Pituitary tumors can return statistically around 10% of the cases when a complete resection was performed or remission was obtained for functional tumors.
They do need periodic follow up due to this chance of recurrence factor.
I am a patient like yourself. I has mine return too - and know several people who had theirs return, sadly.
Pituitary patients should have some sort of monitoring by blood tests and an MRI once in a while (depending on history) for the rest of their lives. Depending on the type of tumor, the risk of it returning differs. For instance, I had two separate types of tumors - prolactinoma and Cushing's. My prolactinoma did not grow back but my Cushing's tumor did.
I hope your sister sees a great neuro-endo and has a wonder, very very experienced neuro-surgeon (as in more than 500 surgeries). Experience makes for a better/best outcome in surgery (unless the anatomy of the tumor is complex).
I have high prolactin as in prolactinoma an taking parodel and it makes ne sick very bad taking UT from 09on and off that pill makes me real sick that I can't work gives me panicattacks si I stop am in a new meds bow called Norprolac they says he works better so for on its way better only have stuffy nose at night an due for a orolactin blood test in a week hoping and praying this pill is working. . Silo u know that pill anyone?
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