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Non Hodgkin's lymphoma turn into CNS lymphoma with fear of cranial herniation

So I was diagnosed with non Hodgkin's lymphoma 4 years ago, it was on the watch and wait in the beginning and I didn't want to so traditional treatment (go ahead with the nay Sayers) but that's what I decided to do. Well fast forward 4 years later I am afraid that I need to start treatment but it might be too late. I am afraid it has went to my brain, for the past 2 months I've had intense pressure in my head only when I lay down on the side I'm laying on. If I switch sides then the pressure goes away. Move to the other side pressure comes back like from the inside like there are actually tumors in my head. I know you can't feel tumors right I just feel the pressure. I am afraid this NHL has turned into cns lymphoma. I am now afraid that I am going to have a brain herniation if this is the case. Am I totally off base here, is this even possible for NHL to turn into cns lymphoma and if I am feel pressure is that intercrainial pressure or is that something different? Just the NHL diagnosis years ago that I never really addressed has me freaked the heck out I can't even function on my daily life now my anxiety is so bad. The symptom from NHL that I let go are bad enough with pain now I am worried about the possible brain involvement. I just don't know what this pressure is. Thank you for any replies, ad before anyone starts yes I know I should have done treatment earlier and I do regret that. Thanks!
1 Responses
1382849 tn?1337552730
MEDICAL PROFESSIONAL
Dear Newgalneedshelp.

This is a very rare situation. You should definitely see your doctor, so he/she can examine you and order tests as brain MRI to rule it out.

Thank you

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