Brain, Pituitary and Skull Base Tumor Forum Forum
This expert forum is not accepting new questions. Please post your question in one of our medical support communities.
Avatar universal

Non Hodgkin's lymphoma turn into CNS lymphoma with fear of cranial herniation

So I was diagnosed with non Hodgkin's lymphoma 4 years ago, it was on the watch and wait in the beginning and I didn't want to so traditional treatment (go ahead with the nay Sayers) but that's what I decided to do. Well fast forward 4 years later I am afraid that I need to start treatment but it might be too late. I am afraid it has went to my brain, for the past 2 months I've had intense pressure in my head only when I lay down on the side I'm laying on. If I switch sides then the pressure goes away. Move to the other side pressure comes back like from the inside like there are actually tumors in my head. I know you can't feel tumors right I just feel the pressure. I am afraid this NHL has turned into cns lymphoma. I am now afraid that I am going to have a brain herniation if this is the case. Am I totally off base here, is this even possible for NHL to turn into cns lymphoma and if I am feel pressure is that intercrainial pressure or is that something different? Just the NHL diagnosis years ago that I never really addressed has me freaked the heck out I can't even function on my daily life now my anxiety is so bad. The symptom from NHL that I let go are bad enough with pain now I am worried about the possible brain involvement. I just don't know what this pressure is. Thank you for any replies, ad before anyone starts yes I know I should have done treatment earlier and I do regret that. Thanks!
1 Responses
1382849 tn?1337552730
Dear Newgalneedshelp.

This is a very rare situation. You should definitely see your doctor, so he/she can examine you and order tests as brain MRI to rule it out.

Thank you

Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease