Have you ever been checked for ACM1??
Your symptoms sound all to familiar to me!!
This is something that I was born with & never knew I had until it ripped the rug out from under me in 2008.
I've since had Tethered Cord Release surgery in 2009 & brain surgery in 2012.
I still have a VERY POOR quality of life! Unfortunately, this is often misdiagnosed as Fibromyalgia or Chronic Migraines. I was being tested for MS & Chiari showed up on my C spine MRI. The neurologist told me that it wasn't significant & I should just ignore it. He, like MANY neurologists, are not well versed in this disorder! It's taken me 9 years & several states to find a neurologist that specializes & is well versed in this horribly misdiagnosed, debilitating disorder!
There are more Neurosurgeons that specialize in this than there are Neurologists that do.
Best of luck to you! If I can be of any help, please don't hesitate to reach out!