By *all the other ones* - do you know exactly what hormones were tested - and at what time of day? Did you get a copy?
It was a CT or MRI? A CT is, IMHO, not a proper way to look at the pituitary. The proper way is a dynamic MRI scan. CTs in general cannot really pick up much detail on the pituitary. You may really have partial empty sella or something?
You should see a neuro-endo a a pituitary center for a complete work up. Even the delayed puberty can mean issues with almost any hormone - and it can be an overage or underage of something.
You may be hypopit or panhyopituitary (I am panhypopituitary) and need replacement of other hormones - some can be vital for life.
Thank you for your prompt answer, Rumpled.
The following hormones have been tested:
LH 4.4 IU/L
FSH 7.9 IU/L
Prolactin 11 uG/L
CK 57 U/L
T4 Free 15.6 pmol/L
IGF-1 189 ug/L
Creatine 67 umol/L - Abnormal
It was a CT scan.
Without ranges, it is hard to tell where you are in the range - every lab differs except, as far as I know TSH. Plus males and females have to be in different levels for androgens (male/female hormones).
Your doctor did not cover all the pituitary hormones and a CT scan is not normally ordered for pituitary. I do all my pituitary testing at 8am fasting - did you?
I would still seek out a pituitary endo - a neuro-endo - at a larger hospital or university.
From what I've read, the creatine is the only number that is low and the LH/FSH are within normal, what makes me think that is a pituitary issue rather that what I've been told: primary hypogonadism.
In any case, I have an appointment in October.
What other hormones tests should I ask for?
My doctor didn't want to ask for an MRI (seems that the waiting period in BC are too long for those) and ordered a CT scan.... Do you think is worth to do one by myself? Should it be only a pituitary one or a full brain one?
The endo I'm seeing, have called me for an appointment 6 months from now... not sure how this BC/Canada system works... Kind of dissapointed!
Did the doc order free testostosterone or bio-available? You should have the latter as it covers all forms.
Primary means the issue is the gland... secondary would mean the issue is the pituitary. With a small pituitary and delayed puberty - I would guess there is more going on elsewhere but you really need to find a pituitary center.
I would try to get into a pituitary center. They can order, I would think, the proper MRI based on the CT showing the smaller pituitary and low T.