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Atypical Meningioma and psychiatric/anxiety symptoms -anyone experience this?

My mum has a grade 2 inoperable meningioma in the pit suprasellar region (suprasellar cistern, cav sinus, pit fossa, clivus and sphenoid sinus), growing fast and causing all sorts of anxiety & psychiatric symptoms .

They originally found the pituitary tumour in Nov 2015 after mum got SIADH and had neuro- surgery in Dec 2015. At that time it was causing all sort of anxiety & psychiatric symptoms as well as her right eye to close (iii N). Pathology came back as Grade 1 M . She had a MRI 3 months later (March 2016) and it had grown back greater than its original size. By April 2016 it was causing the same eye ,anxiety & psychiatric symptoms. She had to have emergency 2nd surgery and was diagnosed a few weeks back with Grade 2 M . They are fast tracking rapid ARC radiation . All this is so overwhelming but the anxiety & psychiatric symptoms make it so much worse for mum. Her MDT say they've never seen anything like it and so I thought Id see if anyone out here had experienced something similar and if so, what treatment they were on?
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Your poor mom seems to be very undertreated IMHO... I would get records and shop the case.

In the mean time lobby the neuro endo to get her on meds so her anxiety and psych symptoms can reduce. There are often programs for the blind as well and I suggest you take advantage (our state has one that offers counsel as well as a program where someone sight impaired teaches the person everything from cooking to sewing or anything they used to do etc so they can resume normal life and this helps a great deal).

I would also research the type of radiation. I know proton beam is the most sparing of healthy tissue. I am not familiar with that type but it may be the delivery not the type. You also want to be at a pituitary center so it will be aimed well. No one talks about radiation leakage but it is there, and it also takes time to work.
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