Brain tumor question...??

[travis487]

  Hello, I am 29 years old healthy active male. I was in the ER a few weeks ago for supraventicular tachycardia, which is a fast heart rate...etc.. nothing life threatening ..Anyways in April 2010 I had a brain MRI with and without contrast that came back negative.... I went to see a neurologist because I thought I felt dizzy sometimes, of balance, forehead felt compacted..slight pain in head...etc... Anyways...I have a history with sinus problems.. post nasal drip, always stuffed up nose, and things of that nature... Right now I feel like my equal Librium is off balance, and feel stuff up in the forehead, just slightly dizzy a couple times... I do not know if its all the stress from having this heart rate thing now SVT. and going for a ablation to correct it, or sinuses... or something else? Since I had a negative MRI in April 2010..what you think?  thank you for your time....appreciated.

[emergrey]

Actually for me the combination of tachycardia and slightly odd thyroid levels indicates that you could well have a pituitary tumour. A rare kind of pituitary tumour called a TSH-oma secretes thyroid-stimulating hormone and can give you tachycardia but normal or near-normal thyroid hormone blood test results; sometimes they secrete different levels of hormones at different times. I know, because this is the kind of tumour I have! I had the exact same experience, I ended up in hospital with a very fast heartrate and no-one could work out why.

A contrast MRi is a good idea, but there are cases of people having very tiny but quite active pituitary tumours which don't show up well or at all on scans. Your endocrinologist could diagnose this condition with a TSH suppression test, in which they give you a high dose of thyroid hormone and see if your body is able to suppress your TSH levels or not.

Alternatively another possibility is a condition called resistance to thyroid hormone, which presents with similar symptoms. These conditions are quite rare but they are also very underdiagnosed as a lot of doctors haven't heard of them. It took me a year from my tachycardia beginning to getting a diagnosis.

Anxiety and stress are symptoms of screwy thyroid levels; for a good while, I was dismissed as being stressed or anxious as well. Your headaches sound like pituitary tumour headaches, but there are other possible causes and this isn't the only one, it's just that you should be aware of the possibility.

Sorry this is a massive post! If you want to find out more, or even ask me a question or whatever, I blog about my pituitary tumour and related conditions at http://www.pituitaryademoaner.blogspot.com

Remember, it's quite possible that you are totally fine, sometimes heart problems are brought on by anxiety disorder, or are just entirely idiopathic. But you should get thoroughly checked out.

[ocbiker82]

I just stumbled on this as I suffer from Chronic-Type Tension Headaches. If you have the same symptoms as before + a negative MRI 2 years ago means you do not have a tumor. What you have is anxiety or high levels of stress (maybe both). In my case, I had uncontrollable Tension Headaches due to a high stress job. I didn't like anxiety meds due to the side-effects, my neuro recommended addressing my stress first then both anxiety and stress would subside. He suggested I get regular massages, plenty of exercise, eat healthy, consider a job change and get plenty of rest. It worked, I still get headaches but they are not nearly as bad as the ones I used to get and my stress level is really low.

just my two cents.

[maladylis]

I have a pituitary tumor and no one saw it on a eye exam.  It is behind both eyes causing lots of trouble and quite large so it can't be said that a eye doc will see it.  They check my eyes all the time and she can't see it but the MRI does.  The MRI  has to be done with contrast.  You could have something as simple as swimmers ear that would give you vertigo.  See a ENT and they might be able to figure it out.  Vertigo is no fun so I can see why your concerned.  

[horselip]

I have decided to ignore your posts now. I agree that you might benefit from getting your anxiety under better control.

I've  thought carefully and took time to respond to you. I think that I have given you very good info (as have many others) and yet you keep cycling over and over on the same stuff and yet ignore advice.given.

It's like when someone asks you how to get to the store and you say, go straight ahead for three blocks and it will be on the right side of the street. But then the person turns left?....after asking three different people.Whoa
Good luck
Horselip

[tiredbuthappy]

i know. I just thought perhaps if a third person reiterated an idea that seems like a logical step, he may consider it before subjecting himself to expensive diagnostic procedures that also expose him to radiation.

[rumpled]

We brought up ENT a long time ago as he first brought up sinus issues... good idea TBH!
Why not check out this forum
http://www.medhelp.org/forums/Migraines--Headaches/show/123

[tiredbuthappy]

My tumors did not cause headaches. My sinus problems cause headaches just like you describe though. Have you seen an ENT? Sounds like your issues could be helped with an ENT. Just because you don't have a runny nose doesn't mean you don't have sinus inflammation. I was also wondering if perhaps you need to see someone for anxiety.

[rumpled]

We are not doctors - and not even a doctor can or would diagnose over the internet with so little information.

You are active. You have a headache - which is a very non-specific symptom (aka it can be attibruted to a lot of things minor to major - I would hazard a guess that the majority being minor).

You are under the care of a doctor and you are going to get a scan if you have not - what you have done would reasonably rule out any tumors. Not every tumor causes a headache anyway. Lots of other things do. To make so many questions and all over a headache NOT a tumor and asking the same questions over and over - perhaps you need an evaluation for anxiety?

[travis487]

Hello, so if you had a brain tumor in the front were your forehead would have pain and got a clean behind the eyes exam would this x out brain tumor? I mean my pain right now is left forehead above eye into forehead and little on left side....so from having nothing or pressure behind my eyes this would in fact not be able to be a tumor there???? just to clarify ..thanks

[rumpled]

The optic nerve issue would only come up if the tumor is near the optic nerve and as we can see with TBH... it is not a perfect test.

MS often shows up with white spots on the brain - but most of them are not out playing tennis etc. to the best of my knowledge as it can effect gait, stamina etc.

Let us know how it goes.

[tiredbuthappy]

My tumor was compressing and displacing my optic nerve. My neuro opthamologist could not see it on any of her tests. I did have other visual symptoms though.

[travis487]

  Yes I have a copy and everything is fine....the only thing Im waiting for is the thyroid results... Also, I ma getting an MRI now because I do not want the radiation from CT scan in me. Another question? What about me having MS??? I mean the Neuro doctor said I did great on my exam he gave me, and there is no history in my family either. And one more thing on the looking behind my eyes.. he said it was good behind my eyes, with that being said does that x out many brain tumors by having a clear behind the eye and no swollen optic nerve????? thx

[horselip]

You should ask for a copy of the lab work, when it is all ready. Sometimes docs say everything is good and then when you see the labs for yourself you might see things that are off. But yes as long as your doc ran some of the pituitary labs and they are good, that is a very good sign.
Horselip

[travis487]

   Hello all... I went for my yearly exam this morning. I had blood work and urine work done and the Dr said it was all great the entire panel....excellent. the only thing that did not come back was the thyroid numbers, which will come within the next day. I am still waiting to get my cat scan also...So would this be good news to not having a tumor? having a clean blood work panel?? thanks

[horselip]

A CAT scan could show a tumor. It would depend on the size and where it is exactly. MRIs are a little better with smaller adenomas which are soft tissue. Pit tumors are diagnosed using a combination of things such as your clinical symptoms, lab tests, MRIs and CAT scans. Scans of all types can miss tumors that are smalll. Because you have such a solid history of sinus issues that you would do a disservice to yourself to overlook that this is possibly causing your symptoms.

In you initial post you asked folks what they think. This is my opinion. You seem like you want someone to say " You have a brain tumor" and you need an MRI. But I just don't think this from what you have stated and your symptoms. I have sinus issues and pituitary problems. My sinus and inner ear probs are cause almost the exact same symptoms that you are having.

My pituitary symptoms are hormonal things like mood, sex drive, weight gain,  fatigue, hypothyroid stuff  dry hair and skin. sleep issues etc.

That's my two cents for what it is worth.

feel better!
Horselip

[travis487]

   Would this cat scan show a brain tumor also?  I read about after being exposed to radiation take in a lot of chlorella, spirulina, and teas...

[horselip]

Hey there
Good to hear that the testing so far, is not showing anything serious. My ENT prefers to use CAT scans as they show bone and structure better than MRIs. For soft tissue stuff MRIs are better. Given that you had the one MRi, I think that a CAT scan might be good to compare with it. It might give a more complete "picture" having one of each. an MRI can always be ordered afterwards if they feel that the CAT scan brings up questions re soft tissue issues. So, if I were you, I would go for it. and then heed Rumpleds advice re the water etc. It has been the cat scans that have shown defects in my skull base that MRIs did not show.

Good luck in whatever you decide.
Horselip

[rumpled]

CT scans are much cheaper than MRI scans - so with no real call for a scan, it is easier to get a CT by insurance than an MRI. I have thyroid problems - have for years - and I get CT scans. The issue is the allergy to iodine. As long as you drink a lot after the scan/contrast, you can usually flush the contrast out pretty well.

They will ask you about thyroid and other issues when you go for the scan.

[travis487]

  Hello I have been reading about radiation from cat scans now.... I called back and left a message for the Dr. via the nurse about me wanting an MRI instead of the cat scan... I have a thyroid problem which I do now, and had some thyroid issues in the past...Wonder what the Dr will say...What you think?

[travis487]

   Hello, today I went to the Neuro Dr. and he gave me an exam and he said I did very well on all the stuff. Balance was great, visuals, walking forward/backward, counting, math, remembrance, and eye function. I also will be going for a CAT scan of my brain he wanted to do for precautions. What do you think about this???? thanks

[rumpled]

I found a site that said 13.8% of all brain cancers were diagnosed under 20 - and the mortality rate is .03%. The stats are not broken out by diet etc. That would include pediatric cancers as well.

Still think based on your symptoms an ENT is your best option.

[travis487]

last question? what are the odds of a white male in their 20's getting brain tumor? that's healthy and eats great? no ent Iam going to nuero doc and then regular doc mon and weds next week.  

[rumpled]

I agree with TBH... unless there is good reason...

There has to be a reason. Have you seen an ENT?

[travis487]

I just scheduled an appointment for Monday with my neurologist I seen almost 2 yrs ago and gave me an MRI...Will he order another one since it is 2 yrs old now almost?