Dads primary CNS lymphoma is cured but he's not better?

[Lyssa0217]

My dad was a pretty healthy, active 64 year old man. In december of 2016 he started acting differently almost overnight, he seemed depressed and not acting himself. He got increasingly worse after that, a few weeks later he was hallucinating, completely delusional and sleeping all the time. I took him to the ER and he stayed in the hospital getting sicker and sicker everyday for 2 months before they officially diagnosed him with primary CNS lymphoma.. Because this is a rare type of brain cancer i havent found much useful information on the internet. Anyway, they did 7 rounds of chemotherapy. The first five were also paired with high doses of methotrexate and the last two rounds they called "consolidation chemo". He just finished his last round of chemo and the doctors say that the tumor is completely gone and so theyre done treating him. He has gotten a lot better since this all started but why isn't he all better? He cant hold a conversation very well, he's still very confused, his memory isnt great, his motor skills are terrible, he's incontinent and he still sometimes seems to hallucinate (he'll tell me stories like the other day he was in the hospital after finishing chemo and  he told me that there were little kids running through the halls all night lighting off fireworks). He also seems to have a much shorter fuse and can be angry and even aggressive. Whenever i ask the doctors what's wrong with him and why isn't he acting at all like himself they just talk in circles about how much progress he's made and how theyre so happy the tumor is gone. I just wanna know what the problem is, is it permanemt damage from the tumor, is it because of them putting so much chemo and chemicals into his brain or what? And most importantly i want to know will he ever get back to being the man he was a year ago? A smart, active, happy go lucky man? Will he ever be able to live alone and take care of himself? Im only 22 and have put my entire life on hold to be here for him and i just want an idea of what our future will look like.

[rumpled]

My cousin had a cns lymphoma as well. He did really great after chemo, for about 5 years. My cousin also had some permanent damage from the chemo, a lot from the steroids which made him more aggressive and when he weaned down, he was better, but his personality was different and he was a lot "shorter" as far as temper went.

He had a recurrence and passed away.