Hello everyone, so here's my story.
Since Oct. of last year I've been dealing with the most annoying headaches. I thought it was nothing cause I do suffer from migraines but these started to become very frequent and different from my typical migraines. I had vision problems also. So, of course I sought help from my neuro. He order for me to have a MRI since I already had a baseline MRI from 5 years ago. He wanted to compare to make sure nothing had changed. Unfortunately, I started have very high BP in the 173/110 range for weeks and had a syncope episode at work. I was rushed to the ER where I had a MRI done. Fast forward to couple of days later and I'm sitting back in my Neuro docs office and he dismisses my headaches to my migraines. No matter how much I tell him this is different, but before I leave he takes a look at My most recent MRI and the tone in his voice changes and he starts asking me an array of question.... have I ever had problems with my pituitary glad? Has my left eye always been droopy? How are my cycles? I'm like what's going on.... He tells me something isn't right on the MRI and it looks different from my baseline. The MRI reads as:
There is slightly prominent enhancement of the infundibulum, but this is not definitely abnormal. In the posterior aspect of the gland, there is a 1 mm area of hypoenhancement probably representing an incidental Rathke’s cleft cyst.
He orders Tsh and Prolactin. My Tsh came back at 5.46 normal range is 0.27- 4.20. The prolactin was normal. Of course, that's a ticket to the Endo. He runs blood work again but now my Tsh level are fine, but he orders something called Igf-1 and the results for that is IGF-1 (Normal range is 53 - 331 ng/mg) Mines was 474. I also had something called Z- score done. I did the Ogtt but I believe the nurse did it wrong, as she only drew one time after I drunk the glucose. I tried to tell my endo but he said I passed and I'm fine. No more follow up is needed. When I asked about my elevated IGF-1 he brushed me off. Is the 1mm cyst or tumor ( their not sure what it is) and my elevated igf-1 enough to dx me with Acromegaly? Sorry for the long post.