6yrs ago, I was diagnosed with a large Pituitary tumor. (It was about 1.3cm IIRC). The diagnosis was brought about by terrible headaches, dizziness, 160/110 BP, and a host of other symptoms. My pituitary was scanned 3 times over 2 yrs and showed steady shrinkage by itself. Last scan had it .7cm.
My problem is I've had SO many other symptoms that I kept persuing it and finally got a diagnosis of Lymes with a Babesia co-infection. The Lymes test was borderline while the Babesia went from positive to negative after treatment with a Malaria medication. This was two years ago.
One of the symptoms I had was SEVERE pain/tingling/numbness in my extremeties that began IMMEDIATELY upon doing a course of IV antibiotics (for central nervous system Lymes infection). That symptom has lasted for 4yrs though gradually lessening over time.
What's weird to me is that my peripheral neuralgia increases significantly with consumptom of carbs/soda. And, I have other symptoms commonly associated with diabetes. (thirst, blurred vision, weakness) Plus, I have real problems sleeping some nights do to the pain located behind me eyes (pituitary). I swear it feels like I cannot reach REM sleep because the pituitary is blocking some brain function that won't allow it. Also, I often get very dizzy (in bed) when this happens. But, the next day when I get up, the dizziness/nasal pain will go away. (In prior years, I noticed sexual activity made the pain/symptoms worse too. Since sex requires pituitary function, it's another reason I keep coming back to that as an active problem).
Scan taken 4 yrs ago showed NO brain interference. So, that cannot explain my dizziness. One website said pituitary tumors have an anemic "ediology" but did not explain that further. What I have to wonder is if some sort of blood flow restriction INSIDE my pituitary is actually causing these remaining symptoms. I've had batteries of tests and never got any other resolution (other than the possible Lymes/Babesia problem). (That infection was treated with about 9-months of antibiotics BTW.)
I also have chiropratic adjustments and testoerone therapy to address the issue. Both seemed to help (a little).
After 6yrs, my wife wants to leave and there appears to be no end in site. I can't say I blame her because I'm not a happy/productive person anymore. I've also tried anti-depressants. But, whatever I do, it seems like this runs in cycles. I'll feel pretty well for about 2wks, then not. While that's more consistent with the Lymes growth cycle, my remaining symptoms seem more like diabetic (hypo/suppressed) symptoms of pituitary problems.
I don't share much with a doctor anymore because I don't know what else to try. Also, my first doctor told me to hit the road after I expressed my frustration 4yrs ago. So, I'm afraid to share much anymore. I've felt bad for SO long, I don't see how it can help! I was laid off 1.5yrs ago -- partly due to my lower work production. Insurance isn't the best it can be now. That's another reason I don't ask/do anymore tests. Basically, I'm w/o medical help because I don't ask doctors what else (if anything) can be done.
Last night, my entire nervous system felt as though it was a tuning fork of pain. My sinuses ached and the room swam every time I rolled over. And, I didn't sleep for more than 2hrs on a stretch. I also have frequent nightmares that make me feel worse. (Nothing related to my current life that I can tell.)
Does anyone know of anything that fits my symptoms? Is it possible I have MS as a result of my hypo-pituitary function? I was tested for that as well.