Brain/Pituitary Tumors Community
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Avatar universal

Please help with advices about brain cancer!

My sister has 3 kids (41 years) in May 2017 was diagnosed in Anoplastic multiform glioma.

Pathology report shows:
MGMT - Non methylated
IDH1 (R132) negativ (IHC)
PCR signal unmethylierte sequenz - positiv
PCR signal methylierte sequenz - negativ
ATRX: partieller Verlust (IHC)
H3K27M: negativ (IHC)

From August 2017 she got
Temodal for 3 months (7 days in, 7 days off) growing continue.
In November she got Avastin +, Ironatecan, growing continue.

December: just Avastin

Now she is getting:
Kepra 3000
Vimpat 100
Dexamethason 8 mg
Vitamin C, B, D
Boswellia serrata
Kytta Sedativu
RSO - 0,5 a day
Ajurvedic treatment

Plan to have Optune in 10 days.

So far we cant stop the growth.

Can you please advice useful protocol/treatment plan which can help stop tumor grow?

Many thanks in advance.

Best regards
2 Responses
657231 tn?1453836403
This is a patient forum and for support... so I can’t give medical advice as you are requesting.

I have had two family members with aggressive brain tumors, an uncle and my father. Some people like my cousin was able to control his for a while, but my other two family members were not able to do much a passed rather quickly (6-9 months).

There are so many factors at play like genetics, lifestyle before the tumor (smoking or not, healthy or not etc) and doctors are going to try try try, but at some point, treatments are going to cause more pain than the tumor... so while it is hard to face, she has to discuss with the family, if she can face it, her final wishes and have things in order and decide when she wants to stop treatments and do palliative and then hospice care.

The doctors can also consult with other hospitals for other protocols but it sounds like they are covering all bases.

I am so sorry to hear about your sister...
Avatar universal
Thank you for your answer and advice
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657231 tn?1453836403
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