I had pituitary resection surgery for an 18 x 18 x 12mm pituitary adenoma on March 19, diagnosed after I experienced worsening peripheral eyesight over a 3 month period (immediately postpartum). Both pre- and post-operatively, I tested low hormonally pretty much across the board. A few days after surgery I was sent home with brand new prescriptions for Cortef (20mg am, 10mg reducing to 5mg pm) and Levothyroxine (100mcg). Just a few days after being home, I started feeling great: I had energy, I wanted to clean, my brain was clear, communications were clear, etc., and that continued on. The only problem was pretty serious insomnia, for which I (with Dr supervision) supplemented with .5mg Xanax at bedtime. Still, aside from that complication, things were going great. I attributed much of the success to the Cortef-- don't know if that was just or not, but it seemed like I was able to manage every day matters with far more competency than prior to surgery. In short, I had my life back again.
Two days ago I started experiencing issues with my energy: I feel both wired and exhausted at the same time, my neck/upper back is sore for no reason, my eyesight if finicky (it feels a bit blurred or like I have difficulty focusing-- not the same as the tumor on the optic nerve blindness), I'm experiencing a bit of dizziness and weakness (feels perhaps blood pressure related?) and experience only an hour or two of my earlier, more consistent energetic highs (by "high", again, I mean energy to wash the dishes and sweep up, not accomplish any superhuman feat). Today even considering leaving the house feels like a huge thing to ask-- I feel, effectively, bedridden, and have had to take a small dose of my pain medication to give me even a semblance of feeling like a normal human being. Knowing very little about how any of this works, I'm still inclined to blame it on too much Levothyroxine as my symptoms more accurately match those, I think. Still, again, I know so, so little, and I was hoping to gain some insight from this community.
I'm also still experiencing transient DI symptoms (it mostly resolved before I left the hospital), which points me to the idea that maybe everything is still totally out of whack....
I don't meet with my endocrinologist again until the 23rd. Should I be calling and asking for help? At this point I feel a little scared at how wildly my symptoms have fluctuated.
Ugh. I thought this was going to be the easy part.
Thanks for your help!