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Brain/Pituitary Tumors Community
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Prolactinoma and menopause

Hi, around 17 years ago I was diagnosed with a macro protactinoma.  My prolactin level was right at 3,000.  The only symptom I had was no periods.  Those never returned but I was told, after blood tests, that I wasn't in early menopause.  My endro and gyn came to the conclusion the reason was my hormones are permanently out of balance due to how long the tumor went unnoticed.  I was put on Dostinex and within 6 months my protactin level came down to 2!  That's the highest it's been since.  Two weeks ago my level was 0.3.  I'll be 49 next month and I'm having menopause symptoms - anxiety thru the roof with fears, irritable, etc...  I'm assuming this is menopause but hard to tell with no periods.  Has anyone with a prolactinoma had heightened menopause symptoms.  I'm typically very calm, etc... I have an appointment with my gyn this Friday, but I don't think there's a lot of knowledge out there except, at a pituitary center which we don't have where I live.  Thank you for reading a long post and question.
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Avatar universal
COMMUNITY LEADER
Have any of your other hormones been checked? With a larger tumor putting pressure on the pituitary, it is not unheard of to have thyroid and other issues and that can change over time.

Is your endo a pituitary endo? If not find one. If so, find another... You need more testing. Larger hospitals or universities should be able to help you.
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