Brain/Pituitary Tumors Community
2.2k Members
1515784 tn?1387197290

Proton Therapy Side Effects?

So, my 25 year old daughter was diagnosed with an anaplastic (grade 3) astrocytoma. She had a surgical resection near the end of November and is currently in her third week of Proton Therapy and chemo with Temodar. Her tumor was in the right temporal lobe and the remaining tumor they couldn't remove (about 10 percent they said) is on her right insula.  Hoping to chat with other people in the same boat as her. What if any side effects did you incur on Proton therapy? Did everyone who had proton therapy to their brain have to be on a steroid? Did anyone NOT lose hair. Please share your experiences. Thank you so much.
3 Responses
Avatar universal
It is typical for any therapy to be on a steroid as it to reduce swelling. There are side effects of the steroids all by themselves (for instance, my cousin had to have both hips replaced).

I have not had radiation (yet) so only know from research and from family. Proton beam is supposed to be the most sparring of healthy tissue. Still, there are going to be side effects during treatment.

As far as I know, everyone who has been treated, no matter the location, has lost hair which is a major bummer!
1515784 tn?1387197290
Thanks for your response. My daughter is 3 weeks into radiation/Temodar and so far they have not prescribed any steroids. She is beginning to lose some hair the last couple days but it isn't like they described. They told her it would be patches in the area she is being treated but thus far, it is random strands and with long hair hard to know where it is exactly coming from.  
Avatar universal
It may help to cut the hair short or shorter to reduce the stress on the hair... but that may be traumatic on her.

Keep us posted and hope all goes well!
Have an Answer?
Top Cancer Answerers
Avatar universal
Northern, NJ
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Here are 15 ways to help prevent lung cancer.
New cervical cancer screening guidelines change when and how women should be tested for the disease.
They got it all wrong: Why the PSA test is imperative for saving lives from prostate cancer
Everything you wanted to know about colonoscopy but were afraid to ask
A quick primer on the different ways breast cancer can be treated.
Get the facts about this disease that affects more than 240,000 men each year.