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Possible pituitary adenoma/New to this

Looking for advice..

For the last three years since I had my first child, my health has gone down hill. I started having abnormal thyroid labs that I didn't follow through with for a while. I lost 25 pounds in about a year and my weight has been slowly getting lower for about two years. I have a hyperactive thyroid, but not hyperthyroidism. My doctor sent me to an endocrinologist a few weeks ago. The Endo said my thyroid didn't feel like there were any growths on it. She did some labs and a cortisol shot test to check my adrenals. My ACTH and cortisol levels were extremely low. My adrenals responded well, so we were able to rule that out. But, my Endo seemed to brush off the low cortisol and ACTH levels. My concern was a pituitary tumor. She said "if I was having periods I was fine". Even though I have every other symptom and lab result to point to a pituitary problem. I have weight loss, no appetite, constant headaches, low sex drive... I left the doctor feeling pretty helpless. Sure enough my period disappeared shortly after. I couldn't convince her to look into my pituitary so for now I'm trying to find someone that will.

Has anyone had similar experience? Or any advice!? Very frustrated.
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Avatar universal
I have the same high prolactin & low cortisol
. I've was diagnosed with fibromyalgia after birth of my daughter 2011 I suffered in silence up until 3 month ago I told my nurse I still was producing breast milk so my GP only did blood screen my prolactin was high so I sent to endro and they discovered my cortisol was also low. I'm scared to have the synach test does anyone know if it hurts.
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Avatar universal
Find another endo please. I had a period the entire time I had two pituitary tumors. Simply put you cannot rule it in or out on such arbitrary information.

Was the stim test at 8am?

What tests have you had otherwise? I have never heard of that thyroid condition.
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