My 12yr old daughter at the time (June 2012) had gone through her 2nd Chiari 1 Malformation decompression w/metal mesh removal@ base of cerebellum, (5days) later external shunt, (2days) later internal shunt, (1month) shunt revision w/ shortening of shunt, and finally in (Dec 2012) shunt removal. After her shunt placement my daughter started to blow up! For the first 4months after she was gaining 20+ pounds every month then finally stopped putting weight after shunt was removed and gained a total of 130lbs on top of her normal weight of 120lbs. She has fought to loose weight, she now has lost 60lbs on a meal replacement plan and with the help of Dr. Ziltzer. A plastic surgeon Dr.Parsons has now given the ok to proceed with an abdominoplasty(standard), brachioplasty(bilateral),lipectomy medial&lateral thighs, and lipectomy arms. Insurance will not cover!! We need help, our daughter has admitted to causing herself harm!!!!! do you know of any foundations or any resources that can HELP, PLEASE!!!!!!!!