got back form columbia ?

[testdeprived]

well i went to columbia to see a neuro endo today, thought id write about it. The doctor says she doubts that i have any problems resulting from pituitary and that none of my symptoms point out as pituitary for her. she did however say she was gonna order a lot of tests, and  i got my blood drawn there. she also wants me to do a 24 hour urine cortisol as well. she said that usually small tumors dont cuse problems, but might as well look at the hormones anyways. im pretty sure she only ordered total t3 and not free t3, and free is better, but  i didnt press any issue.

they took about 10 tubes of blood and now my jaw is killing me for some reason.

btw  im pretty sure my symptoms sound pituitary..but every doctor says they dont..here is the list LOL

so to wrap up my symptoms are
low testosterone(got it checked)
headaches0not terrible but frequently
poor eye sight, double vision, blurry vision, sometimes see black **** i nthe air,
stomach issues(been having these for years)
focus, memory and basic feeling of being alive is gone
muscle and joint soreness
dizzyness
insomnia
feel pressure in the back right side of my head
i sometimes feel a beating there if i touch my head in that spot
i also freqently have chest pain
high cholesterals.
also sometimes feel like my head will shake  like i will have a seizure but i never do
constant dizzyness
difficulty forming sentences or getting point across
lack of comprehension and cognition i got fired from my last job for not knowing how to peel a banana and i cant hold jobs...im gonna be trying to get disability checks and might frop out of college because  icant stand the headaches.
pins and enedles
skin irritations
constant sore throat
sore neck
cramped figners

[soldy]

Hi,Please .present your case to Prof.Dr.Garth Nicolson at Autoimmune Disorders Community(doctors expert)forum.Just repead your question from Oct 14,2010.He will be answering question for two more days.

[testdeprived]

i guess my next step is to let you know my labs when i have them...hopefully ill receive them tomorrow also...is encouraging that you and your friends did not find columbia helpful,yet still had real problems that werent ''in your head''...just in the pit=p

ill post my results as soon as i get them,hopefully then we can see what's going on with me..she  did do a nice workup I think..although nothing concerned her -_-

[rumpled]

I am not surprised the radiologist missed it - they have a nice MRI but they don't do pit surgeries there.

Just because it is listed on that website does not mean they are great. My first doc was from there and he was horrible. I also went to Columbia and had no luck as anyone I know that went there.

It took me over 10 doctors - so your option is to keep trying, or stop. Your option.

[testdeprived]

i really hope columbia isnt the best this world has to offer...i am starting to reallllllyyyyyy fee discouraged...i figured if columbia cant help me...noone can this cant be true can it????

after demanding i get a call back because i never received one despite leaving several messages,i finally got w a call back....they were open from 8-5,and th4ey wouldnt tell me when shed call...she calls at 4:59 -_-.

anyways she said she had the radiologist look at my mri,and indeed my tumor was hiding..or the saint barnabas radiologist missed  it...her words exactly..were that her radiologist found an abnormal area that wasnt picking up the contrast properly..it was roughly a few centimeters...and possibly an adenoma BUT IT WAS OF NO CONCERN TO HER...and she wouldnt write me an addendum cause i didnt pay for one.
she believes my problems are not endocrine related....she said i could have been born with the abnormality in my brain that was a few cms. although barb says she was born with her rat clieft or w/e she has..and said i may have that..hers is small

she said  my cortisol was on the high side..but she said its cause im stressed about my bad health....she also said that my hemoglobin was high again..but to her it wasnt a concern it wasnt high to her..just me..it was 46.6 or something on a range up to 46.4?
i dont have the exact results yet..im picking them up on monday...but im in tears here...

i thought maybe thyroid was my problem....ive had tsh of 2.75 a year ago, and a tsh of 3.22 back in april....i thought it would be high this time...but it was perfect...it was 1.13..

if a columbia doctor couldnt help me,what hope is there for me? i fell like im just wasting my dad's money going to doctor's and proving my psychologist right, that I have a generalized anxiety disorder....i know im sick...i know there's something physiological. im 6'2 178 pounds...i have been lifting weights and excerscing for 6 years...yet i cant even jog a quarter of a mile without nearly fainting!! i get injured quickly, i dont heal...and this is in addition tall of the other problems i have been telling u guys for the last 2 years...at 21 years old this is horrid.

rumpled should i just give up on getting treatment? columbia neuro endo,who's on pit network,was not a great deal of help for me....ill admit she was fairly nice to me...but if she couldnt he; me who could? i doubt even friedman could!

also i got my cortisol tested at quest,and my other tests at columbia..she said she was faxing my blood to my primary and mailing me a copy,does that mean shes faxing just the blood...or the cortisol urine too?
im just o upset

if this site didnt exist id prob lock myself in my room,and cry all day....this site has helped me keep my sanity..there are other people like me...with small adenomas...with MY SYMPTOMS..people LIKE YOU...who were denied treatment....yet were sick...this site help me see,i might have a real issue,and not psychological.....i cant give up yet

also i had low vitamin d...back in february...and the doc told me to take 2000 units...well i wasnt feeling better and for the past 6 months ive been taking 10,000 units to feel mildly better AA DAY...and my recent blood work was only normal....l would think if i had a normal body taking 10k a day would put me in the high range...or hell even above..or kill me perhaps...but i prob have a problem absorbing vitd, if i could take that much and still be normal..although who knows maybe im low normal gotta see the result

[testdeprived]

great, they told me the opposite lol. i actually woke up at 12:15 and just made my last pee..figured it wouldnt matter too much.
oh well.

[rumpled]

Your 24 hour test started from the first void - 9:30, so you have to finish at 9:30, not 11:15.

Always keep the pee cold and  yes, they do not - which degrades it... I use ice packs when I go there.