got back form columbia ?

[testdeprived]

well i went to columbia to see a neuro endo today, thought id write about it. The doctor says she doubts that i have any problems resulting from pituitary and that none of my symptoms point out as pituitary for her. she did however say she was gonna order a lot of tests, and  i got my blood drawn there. she also wants me to do a 24 hour urine cortisol as well. she said that usually small tumors dont cuse problems, but might as well look at the hormones anyways. im pretty sure she only ordered total t3 and not free t3, and free is better, but  i didnt press any issue.

they took about 10 tubes of blood and now my jaw is killing me for some reason.

btw  im pretty sure my symptoms sound pituitary..but every doctor says they dont..here is the list LOL

so to wrap up my symptoms are
low testosterone(got it checked)
headaches0not terrible but frequently
poor eye sight, double vision, blurry vision, sometimes see black **** i nthe air,
stomach issues(been having these for years)
focus, memory and basic feeling of being alive is gone
muscle and joint soreness
dizzyness
insomnia
feel pressure in the back right side of my head
i sometimes feel a beating there if i touch my head in that spot
i also freqently have chest pain
high cholesterals.
also sometimes feel like my head will shake  like i will have a seizure but i never do
constant dizzyness
difficulty forming sentences or getting point across
lack of comprehension and cognition i got fired from my last job for not knowing how to peel a banana and i cant hold jobs...im gonna be trying to get disability checks and might frop out of college because  icant stand the headaches.
pins and enedles
skin irritations
constant sore throat
sore neck
cramped figners

[testdeprived]

so you dont think i should worry about making sure they give me a neuro radiologist?
ugh its so hard to get them to answer their phones noone answered today

is it possible that if  i have the worst symptoms in the morning, that the tumor would show up more on the mri in the morning?

i was debating just asking the primary for another mri, instead of having us possibly pay for a second opinion.

[rumpled]

Columbia should be fine - they are a pituitary center. That is funny what they said...

[testdeprived]

oh ok, its a relief you feel that way. i was hoping  i wasnt the only one who had problems with the radiologists hahahah

u trust columbia to read scans right? i know you dot go to them, but you would trust them right? they are considered a pituitary center right? so i shouldnt have the same problem?

so im making the appointment for the second interpretation tomorrow. should  i say make sure a pituitary expert reads it?

its funny, at saint barnabas the original guy who read it wasnt even the ''brain'' radiologist. so i said i wanted their brain guy to read it, and that guy said there was nothing there..haha.

[rumpled]

I like the MRI machine - I rely on other doctors to read the scans. They are not a pituitary center so yup, their doc can't read them. I get my surgeon to read them.

[testdeprived]

at this point  i have everything set up for columbia to read it.  i know they are competent(at least the radiologist who read it the time the endo gave it)

and the primary care wrote the letter to insurance which ill submit.

i dont wanna shop to neurosurgeons. most of them are useless and will just tell me that the tumor is liek a pimple on the *** and doesnt hurt me...and  everytime  i hear that it upsets me.

only thing im concerned about is making sure columbia gives me the same radiologist who looked my films over the first time? or atleast someone from the neuroendocrine unit?
do uthink that's an unreasonable request? im calling tomorrow to ask. if they read it wrong also, not only will insurance not pay, but itll be more proof to nih that im tumor free haha.

im surprised  you like saint barnabas so much....i will NEVER go back to them!

[rumpled]

Usually to go to NIH, you have to submit old and new records - and they can see the tumor there and that your labs show something still and they *should* understand about MRI differences as well as radiologist skills...
That being said, you can find surgeons to read your films for free and get an email from them. You have been to Columbia - can you send the CD (copy) to a surgeon there and have them look at it and see if they will look at it? Try those avenues.

I tried a new doc elsewhere - he was awful. I will stick with my Pittsburgh doc.