prolactin levels / pituitary tumor

[SarahB79]

Just out of curiosity, for those of you with pituitary tumors...

What were your initial readings of prolactin before treatment?  

What else was effected in your body by your tumor?

What are they now and what treatment are you doing and for how long?

[baboom]

I also have the same problem my prolactin level was at 87 and have been taking cabergoline .05mg 2x a week my prolactin level has dropped to 27. I have been taking cabergoline for the past 3 weeks. I got my period one week after starting the cabergoline ( last period was march 2013). I have a macro tumor 18mm by 14mm. My next MRI is scheduled in 3 months. I am 28 years old. I also had severe headaches with the cabergoline and i drink the pill in two parts. I dring 1/2 on monday the other half on tuesday and again 1/2 on thursday and the other half on friday. It helped me alot by doing this.

[rumpled]

Please find another doctor. Illness can raise prolactin - but if you have consistently raising levels you need a neuro-endo or a different neuro-endo.

[chic37]

Sarahb79
I also have the same problem, I'm on destinox and I take it 3 times a week since last November, levels are still going up and my endo keeps saying it could be stress?? Even tho I told him I'm not stressed ...  I pusuaded him to do an MRI and have an appointment for the end of the month so will see what that brings...

[aklingman]

You could be my identical twin! Seems like you have wonderful doctors, you are lucky! I see it's been 4 yrs since your initial post. How are you doing now?

[aklingman]

I did and ended up with so much acne I couldn't take it!

[peachy37]

Hi, the only condition that causes hands and feet to grow is Acromegaly. You need all your hormones tested, igh, glucose, tsh with the t4 t3 trh, prolactin etc.You need to find a good Dr. of Intergrative medicine who listens and tell him this symptom. Ask them to test you human growth hormone hgh, And IGH, and if need be glucose test to check the HGH, Prolactin levels can rise from Acromegaly too. Acromegally is caused by a pituitary tumor. Glucose can rise, tsh can rise, and prolactin can rise. Can cause larger feet width pain, longer feet and weight gain, bone pain , etc. Try to google. God bless you, guide you to compassionate Dr. and heal.