I will echo what sunbeamin said, make sure you have doctors who have extensive expereince with pituitary tumors and have time to answer questions. Peace of mind comes with anwered questions and at least knowing a plan has been established for future care. I have a 5 mm microadenoma along with a couple of cysts that measure 2.5 mm. Mine is being watched though I will be going for another opinion at some point. From all the reading I've done usually if the tumor is as small as yours they do a wait and watch approach. I've been told the risk of surgery is too high with it being as small.
That's a good question about pit tumors going away on their own. I'd be curious to see what the answer is to that. You can msg me if you'd like. I am on the wait and see plan for now :-)
All the best.
I don't know if surgery would be the right option or not, there are a number of factors. I personally had a pituitary macroadenoma removed 13 yrs ago. I have since had regrowth and currently am being treated medicinally for a 1-2 cm prolactin producing macroadenoma. The difference this time is it is not pressing on the optic nerve and I am not trying to get pregnant.
The most important thing you can do for yourself is find pituitary specialists in endocrinology, neurosurgery and opthamology. A good source of information, including a list of pituitary specialists is the Pituitary Network Association (www.pituitary.org).
And regardless of the issue, pituitary or other, don't settle for a doctor that doesn't have time for you or seems disinterested. Get the care you deserve.
The previous comments are right. I suggest that you see a pituitary specialist. If you are near Hopkins, we have an endocrinologist who is dedicated to pituitary lesions named Dr. Roberto Salvatori is you're looking for someone.
A related discussion,
Pituitary microadenoma was started.
A related discussion,
pituitary tumor was started.
Thank you for the advice- I apprciate it very much!! I am still waiting to hear back about my labs- and it's hard not too feel glum overall. I just wish I could be more positvie. I will seek out another opinion if I don't agree with the next recommendation.
Again thanks!!