I am so sorry to hear that you have such a rough time with infections,pain etc...
Med Help has a Forum that deals with "granulomatus-mastitis" which is a type of infection that it's hard to heal.There are several women who have posted there and you might find a lot of information concerning this type of mastitis,and which doctor can better help you.
I really hope that something can be done to better your situation.
Please click on the link below.
PS. The swelling in your arm and hand could be "Lymphedema"Please click on this link to know what to do about this problem also.
Wishing you all the best...