Hi,
I am so sorry to hear that you have such a rough time with infections,pain etc...
Med Help has a Forum that deals with "granulomatus-mastitis" which is a type of infection that it's hard to heal.There are several women who have posted there and you might find a lot of information concerning this type of mastitis,and which doctor can better help you.
I really hope that something can be done to better your situation.
Please click on the link below.
http://www.medhelp.org/forums/granulomatous-mastitis/show/707
PS. The swelling in your arm and hand could be "Lymphedema"Please click on this link to know what to do about this problem also.
http://www.mayoclinic.com/health/lymphedema/DS00609/DSECTION=treatments-and-drugs
Wishing you all the best...