Liver & Bone Mets

[JBern500]

My wife was diagnosed with IBC in 2006.  Her treatment has all been done at the Cleveland Clinic.  We were told in May 2007 that it was back in her bones and liver.  It seems to growing at rapid pace.  Had another ultrasound done today and they had to get a Radiation Doc in there to look at it.  My looked at the ultrasound and said that it looks like they are everywhere.  
She is currently in the Cleveland Clinic in the Palliative Medicine floor due to bone and liver pain.  
She is currently on Zoladx and Femera, spelling could be wrong here.  This does not seem to be working as the liver has gotten worse.
What is the course of treatment here and what is the life expectancy with this.
Jeff

Dx. 2/14/2006 Age 36
ER+/PR- HER-2 Absent
Dose dense A/Cx4 & Taxolx4 w/Neulasta boost
CT/Bone Scan 3/17/2006 small liver spots,
grey area around left rib cage, water on rt.lung
MRI in 5/06 water on lung gone 99% reduction of tumor!
Started Tamoxifen 20mg for a 5 year run
Rt. MRM 6/30/2006 - 13/14 positive nodes
Residual cancer found in breast, clear margins!
34 Rads + 10 Boosts finished 9/01/06 (twice daily for 4 weeks)
Metastasis to bone and liver May 2007
Zoladex and Femera started in May 2007

[lizziecee]

What awful news about your young wife.  IBC is unfortunately a very aggressive bc disease, and often afflicts younger patients. I do think however, that the Cleveland Clinic is perhaps one of the two top hospitals in the US for cancer care, if not worldwide,  - the other is Mayo clinic, but I don't think with your wife's diagnosis they could help any better.
I am rather surprised by some of your wife's stats : being ER+/PR- and HER2- is good. Although when I look at the stats now, your wife's 13/14 positive nodes was not a good prognosis and IBC is known to be very aggressive, especially in younger women.   This probably means the cancer had already spread to other organs before she was diagnosed.  I had 4/18 positive nodes, so you can put that in perspective, but I had invasive ductal cancer, which is less of a risk than IBC.
One item I don't understand from your post is: "residual cancer, clear margins."
I had clear margins after a lumpectomy, but what does residual cancer" mean? I would ask her doctors.
The fact that she is now in palliative care I guess means they have tried all options. I am so very sad for you, a very caring husband who has taken the time to come on here to post his concerns.

May God go with you and your wife.
Liz.

[boninclyde]

Also, call in other doctors for a second opinion. Always get a second opinion. Did they do a biopsy on the liver spots? They could just be cyst.

[boninclyde]

I am sorry about your wife. I had breast cancer but was fortunate that it had not spread. Please go to breastcancer.org. Then community support, join the discussion board  and scan through the topics there. There are ladies there that are going through what your wife is. They can tell you about other meds that they are on that may work. Or you can post your question here to the doctor on the doctors forum above. We only get 2 questions a day so posting in the early morn is best. There are allot of new and wonderful drugs out that possibly will help your wife. I wish you both the best.