I am 21 years old. I have had several breast fibroadenomas. It started when I was 15 years old. Because my mom is a Stage 4 breast cancer survivor, the first lump that was detected in me was taken very seriously. I had it surgically biopsied and it was larger than a softball. In surgery, several fibroadenomas were found and removed that were never detected by my ultrasound.
Since then, I have had over a dozen LARGE fibroadenomas removed and others I have had needle-biopsied. In regards to the size of these fibroids, for example, my newest addition to the family of fibroids came out of nowhere. 6 months ago, in my ultrasound, it was not there, but 6 months after that ultrasound, I had an MRI, where they found the newest fibroid to be 4 cm! So they are growing quite rapidly! Doctors have also found pseudoangiomatus stromal hyperplasia in both breasts. The catch is, I experience a great deal of pain that radiates from these fibroids. I have seen several doctors who have suggested everything from acupuncture to Tamoxifen. I have tried nearly every holistic method in the books. (Acupuncture, acupressure, herbs, yoga, pilates, special diets, healing touch therapy, etc.) I won't try serious medication such as Danzanol or Tamoxifen because the risks are too high. As I said, I am 21, I would like to babies someday and these medications can challenge my ability to procreate.
I am throwing my hands up in the air. I have debated getting a mastectomy for years and feel I am almost completely ready to do it so I can get my quality of life back to what it was before this all started! It's been too long. Can anyone offer me some insight as to if this is a good idea? I have doctors who will do the mastectomy and reconstruction, but I want to make sure I have exhausted all options prior to something irreversible. Does anyone know of any other treatment for fibroadenomas? Or any other cases similar to mine? I have never heard of someone going through fibroadenomas like I have had! HELP!