Last year, at the age of 42, I was diagnosed with stage 2, invasive lobular carcinoma. My tumor was 2.5 cm and I had a lumpectomy followed by a full axillary dissection (which was horrible) and then 3 months of chem (cytoxin & adriamycin) and 33 radiation treatments.
June 8 (my birthday) will be a year since I completed treatment. Along with other "fallout" issues of the treatment, my most problematic issue is my ongoing pain. The pain in and around the breast area I was told was from radiation damage and my oncologist said they weren't able to tell me if this pain would go away or not. He said everyone is different and I've always been in the "non-majority" pile through all of this. I'm also dealing with intense joint pain. Sometimes it's also in the hip, but the worst is in the hands and elbows. I feel the pain get more intense thru the nite and in the am, I can hardly move my hands or arms. I cannot extend my arm fully or bend it, nor can I grasp or pick anything up without the pain getting even more severe. Obviously this is very debilitating and when I asked my oncologist and radiation oncologist about this, they both said it's either from the chemo or the tamoxifen treatment I am now on for the next 3-5 years. I heard that comes with joint pain, but the post-menopausal drugs come with even higher joint pain. I can barely deal with what I have let alone a future of worse pain.
Either way, am i stuck suffering with pain forever??? Does anyone else have such joint pain issues? I've been taking glucosamine chondroitin as well as a multivitamin and vitamin D and caclium, but I don't notice any improvement.
Would love some direction or support if it's out there,
Thanks a bunch! Bon Bon