Cancer Community
6.55k Members
Avatar universal


In February 2007 I began to use a mouthwash, an expensive one and said to be gentle and bought it off the shelf.  In march 2007 I found that I have a red area in the very pit of the palate on the roof of my mouth approx 2cm dia.  In April 2007 I visited my doctor (UK) about the red area he stated that it was not a typical oral cancer and that it was more than likely related to the condition of my teeth and he said I should see a hygienist. He gave me some steroid tablets, but they made my mouth much worse it was so sore.  I have an acute fear of the dentist and despite my doctors recommendation I cannot get past the entrance to the dentist because of this terrible phobia.  By June 2007 I had developed a v shaped lump behind my two central top front teeth, this sometimes all but disappears (usually in the mornings) and gives me no pain at all, and is smack in the centre.

The red area on roof of mouth continued to spread and by October 2007 it was extremely sore, it had covered 95% of the top of my mouth and was bleeding in parts and yet again all the skin peeled away (mouth had peeled like this since March 2007 continuously) I gargled with many mouth washes over the months but a strong salt water solution did the trick and in early November 2007  it started very slowly to heal - as of now roof of mouth now feels completely smooth, although the natural ridges are greadually reappearing behind my top front teeth, its no longer sore and the red patch is now a bluey colour and is half the size, but has spread a little (2cm approx length) either side down the back of my throat, in a "erratic" pattern.     Another complication - at the back of my throat (2 weeks ago to be exact) a yellow butterfly shape of flesh has appeared, covering the throat area behind the tonsils,  a white fairly thick wiggly vein which travels from dangling fleshy thing at the back of my throat which has something growing on it  - I don't know what its called, right up through this butterfly of yellow flesh to the midline and meets the area where this v shape lump is at the back of the  front  teeth, this lump is about 1cm in length and 10mm dia -   Would you agree that I have to deal with the fact that  it is after all actually cancer and as I have left the whole scenario for quite a while I will loose my voice box and both palates? and if I decide not to go the surgery route how much time do you think I may have before I die of it ?  I am in no pain and feel healthy otherwise.  As far as I know The NHS (national health service) are now under instruction from the government in UK where I live not to treat self inflicted  cancer patients - (I am ashamed to say that I have smoked for 25 years but have given up now,    Its an awful addiction I wish I had never started) I gave up for the 199th time when this yellow thing at the back of my throat appeared 2 weeks ago,even so -  this cancer will be  deemed to be self inflicted by the NHS so theres no point going back to the doctors.  I would just like to know an approximation as to how long I have got if I don't have half my head cut away and what if any alternative option I may have.   I have no life anymore anyway because of this whole scenario.

For your info My last dental check up was in January 2007 as I had suffered with extreme pain for over a year with a top tooth at the back of the mouth -  I had attempted to remove the offending tooth myself but it cracked in half so I had to go to the dentist, future treatment was scheduled - ie 2 fillings an a root canal but I couldn't go back.

I take a beta blocker but I don't think its because of that.  Its a low dose one and I don't take it very often now that the smoking has stopped - I can tell my bp is lower, I can't hear it any more, now and again my heart beats very quickly but they are looking at that as other than the speed theres no abnormality on my ecg.   I suppose I will get an appointment through at the hospital in a few months about that but if the redness in the mouth etc could be due to that drug please let me know.

Please feel free to ask me any question if you need further info -  Thanks very much indeed for your help.
5 Responses
Avatar universal
ps I had the tooth extracted that I had tried to take out myself during my last visit to the dentist that was in January 2007 per above.
330478 tn?1278284916
I'm sorry to hear that all of this is happening to you. The "what if" and the wondering is always the hardest. I am 18 years old and am currently awaiting surgery to remove a cyst on my right ovary that has said to be possible ovarian cancer. It's a very scary time, that is for sure. Through reading your post, I have never heard of a mouth wash giving someone cancer. It sounds to me like it could just be an extreme allergic reaction possibly? I'm guessing that the lump on the top of your throat, if it were cancer, it wouldn't have come and gone every so often. Cysts and tumors don't usually come one morning and leave the next. If it were some type of cancer, it probably would have progressed further by now. It has been almost a year now, your symptoms wouldn't have gotten better because of a saltwater mouthwash had it been cancer. Cancer is the type of disease that needs vigurous treatment like chemotherapy and radiation as you probably know. I would consider possibly visiting an allergist. There is probably some sort of ingredient in all of the mouthwashes used in the UK that irritates your skin to an extreme degree. The fact that only the area that was exposed to it was the area that experienced the most, it's probably something as simple as an allergy. Obviously I'm not a doctor but I've been through my fair share of health problems and allergies to decipher the difference between everything. I wouldn't worry too too much, I don't think you're going to die. However, if you're worried.. I would go and see a doctor for a 2nd opinion. I know that you said you have a phobia about going to the dentist but think about it, this is your life, if it was something serious, not cancer, but something serious, wouldn't you want to know about it and fix it. I would. I would want to live my life to the fullest. I hope all of this helps.
Good luck with everything!
Keep us all posted.
Hope and Faith,
best wishes.
Avatar universal
All the very very very best wishes for you - I hope they don't keep you waiting - at 18 you have the world in front of you, unfortunately life has its way of throwing stuff at us -  slaps and turns I call them - you get slapped in the face by life and then when its sorted it invariable turns you and your life into another direction, be it health, relationships, work, education, family  its all relative.     You are a strong person I can see that in your words - I do hope all goes well - keep posted if you are able and want to.  My thoughts and prayers will be with you.

Thanks very much indeed for your kind words - I thought your post rather marvellous actually, some food for thought thats for sure and I have been over the same stuff in my head a zillion times but I .....Rationality of fear I'm afraid doesn't exist in my world, dentistry is my very worst nightmare x 1000000&some, this fear arises from a treatment I experienced at the age of 33 - before that I was fine, well I was never that impressed but it didn't freeze me to the spot and affect my ability to breath at the mere thought like it does now.

Once again, all the very best of luck fingers and everything possible crossed for you!

Avatar universal
Take this 10 seconds and this HUG as its just for you x

Avatar universal
Can anyone help me?  I have been on Terbinafine (treatment for nail fungal) for one year now.
I have had 3 tests from my fingers to see if it is a fungal infection that i have and all 3 have come back saying No fungal found...  The tips of 4 of my fingers are swollen and it seems to be speeding faster in the last 3 mths.  my nails are still strong they never flack or crumble like normal fungal nails. I am a smoker of 25 years silly me.        
Have an Answer?
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Here are 15 ways to help prevent lung cancer.
New cervical cancer screening guidelines change when and how women should be tested for the disease.
They got it all wrong: Why the PSA test is imperative for saving lives from prostate cancer
Everything you wanted to know about colonoscopy but were afraid to ask
A quick primer on the different ways breast cancer can be treated.
Get the facts about this disease that affects more than 240,000 men each year.