waiting on urology

[nicolette1972]

i am feeling very frustrated right now,i have some medical training so know from my bloods and urine cultures that i have tested positive for cancer cells,egfr is > 60 and epithelial cells in urine amongst rbc aswell,noone is disputing that i am not sick,i get the feeling that my husband knows more than i do,i requested a scan two weeks ago from my gynae consultant as i have recently donated eggs,they said my ovaries looked fine yet requested urgent bloods and refused to show me scanner whilst examining me as i had stated that i feared there was a growth in that area.........long story short is that i am on codeine/tramadol for pain and 500mg ampicillin 3 times a day although i am only tolerating 2,im getting the idea that the cancer has spread and i am preparing myself for the worst,just incredibly frustrated why the medical staff will not address my questions and seem to side step all the time,is this normal protocol??can an oncologist only discuss prognosis??i have suffered from many uti s in the past so am not being readily fobbed off,im having the most awful nightmares and am actually scared to go to sleep,dying is a recurring theme,i would very much like to connect with anyone who understandsXX

[nicolette1972]

thankyou so much for your kind comments!!i just dont understand why no doc has so far mentioned the 'c' word,this in itself has been traumatic as i know full well what is going on,im now dreading my appointment coming through to see the specialist as each day seems to bring new symptoms,i cannot keep on top of the weight loss and i seem to be holding alot of fluid in my abdomen then peeing it out later on,i am preparing myself for the worst now as my symptoms seem to suggest an advanced stage,sometimes i find myself gripped with panic and fear and just have to be alone in my thoughts,the rescue remedy spray seems to work ,then other times i will fall in to a deep sleep only to wake up crying with fear and feeling disorientated and i still havent been able to speak to my husband,he wont engage in this conversation at all even though im dropping very heavy hints about whats wrong,how do i help him cope??

[Kim P]

Hey! Just some word of love.. There are alot of things we go through in life that we can't handle ourselves. Been down that road and found that only God can help.. He can give you peace in your heart..Just Seek his help.. God Bless you and I am praying for you!!!!

[ree474]

Hi I have been where you are and still working my way through it all.  It took what seemed like ages to get comfirmation that I had cancer,  My surgion confirmed that I had cancer after having a week of test that were what I thought for gallbladder,  No one told me that I was being tested for cancer.  I was admitted to hospital during that time as I was a pretty shade of yellow.  I had no pain or any other symtoms.   This all happened four months ago.  I was diagnosed with pancreatic cancer, and had whipple procedure to remove the cancer.  I have night mares about dying and don't sleep well, and take tremal for pain after chemo..  So I do understand what your going through.         Ree