New treatments for Juvenile granulosa cell tumor

[m_p_c]

I was 26 when I discovered I had ovarian cancer. I had a foot long tumor on my ovary which turned out to be a juvenile granulosa cell tumor. My tumor burst on the operating table and they performed a complete hysterectomy removing both ovaries as well. The tumor board recommended chemotherapy so 2 months after my first surgery I started chemo. The chemotherapy included sisplaytin, if I'm spelling that correctly, and it was quite harsh . I lost my hair and was nauseated but 2 treatments in they discovered the port they implanted in me caused an infection that traveled to my heart and resulted in open heart surgery and 6 months later my cancer came back. At this point my wonderful doctor suggested femara or letrozole that shrunk my tumors in half and I was able to have another surgery. The last surgery seemed to get all of the cancer and I continue to this day to take femara and I'm currently 4 years in remission. The femara saved my life however the side effects are horrible. I have a fever most nights and of course hot flashes, since I'm in menopause, and I'm nauseated most of my waking moments. Plus my bones ache and I just feel horrible overall. It feels like I'm swimming against the current every day of my life,  just walking 50 feet exhausts me. I was wondering if there was any new treatment for my type of cancer or anything I can do to combat the side effects. I am glad to be alive but I'm really living a half life currently. I'm open to any suggestions. Thank you

[mcn82]

P.s.

Check out these links as well:

http://www.cancer.gov/clinicaltrials/search/results?protocolsearchid=12662979
http://www.gctf.org.nz/#

Greetz :)

[mcn82]

Hi, my story is your 4 first sentences until now, im 2 years further, but had a lot of other physical complaints and complications. I recently stumbled upon this website:

http://clinicaltrials.gov/ct2/show/NCT01584297
maybe it helps you.

Wish you all the best, and stay with a good moral! it is the most important thing in life. I have been in a great depression, even though i consider myself an optimist and strong character... Keep on going, keep on fighting, and keep on surrounding yourself with positive people.

Take care!
M

[Dr Santos]

Hi,
Juvenile granulosa cell tumor (JGCT) of the ovary, if diagnosed at an early stage, has a favorable prognosis. JGCT can be successfully treated with surgery followed by adjuvant cisplatin-based chemotherapy. Continued close surveillance is recommended to make sure that there is no recurrence. Alternative therapies such as acupuncture may also help with symptomatic relief  like pain and nausea.  Hope this helps. Take care and do keep us posted.