I have CLL. I would get to a major cancer center as soon as possible for rediagnosis. M D Anderson was my choice. And do it soon. So sorry this is happening to you.
Please keep us posted.
All the best for you and your husband.
Bonjour.
Thanks for your help, I will talk to the Dr again and maybe its time to move on to another Dr, Thanks again... Virginia
Well, CLL is a blood cancer and NHL is a cancer of the lymphatic system.
You sound totally confused. I would seek a second opinion about your husband's situation if you can. I am wondering if the bone marrow transplant is failing, and if he is still in remission as this physician states.
Does this physician visually show you his lab results,etc? I would start asking for copies of his lab results, etc. if you all are going to continue to deal with this physician. Have you told the physician your concerns? If you all have and you feel you are not getting answers please move on to someone who will give you answers.
I am going by what they told us after his bone marrow transplant, they said he still has CLL...I said he has cancer in his blood still yet and they said yes.
He has both, he started out with non hodgkins lymphoma stage 4 and after his bone marrow they told him he still had CLL...We are so confused the Dr. is not good at telling us anything, execpt your blood work looks good...
Confused. Does your husband have Non-Hodgkins's Lymphoma (NHL) or Chronic Lymphocytic Leukemia (CLL)? They are not the same.