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RCC in 2006 - Now possible mets in liver
Hi,
I am a 51 year old female. I had a partial nephrectomy for Grade 2 RCC Clear Cell Multiocular Cystic Varient in Jan 2006. Then during a cystoscopy in the spring of 2007 they found a superficial TCC tumor in my bladder that was biopsied and lasered. Over a year ago On my Cancer follow up MRI they found a lesion on my liver that wasn't the normal hemangiomata / hemangioma / cyst like they have been finding on every MRI / CT scan that I've had since my RCC was found. This is from the MRI report:
MRI report it say's "A 9mm lesion within the right hepatic lobe demonstrates T2 hyperintensity and peripheral enhancement of postcontrast imaging and does not meet criteria for hemangioma and remains indeterminate. The portal vein is patent"
Also further down on the reports "Impressions" it says "A third hepatic lesion remains indeterminate and metastatic disease is NOT excluded. Recommend follow-up with MRI exam." From the very begining all my Doctors Said I didn't Need to see an Oncologist". And this time was no different.
My urologist at the time was checking with other Doctor's about whether to do a biopsy, because he was worried that there could be bleeding problems since it was in my liver. Then my Mom was put on hospice care and I couldn't follow up on it. Then I lost my insurance when my divorce went through.
My current Doctor wants to send me to an oncologist but I would have to pay money upfront that I don't have. I'm feeling weaker all the time and have been losing more weight. I don't have much of an appitite and I have lost the taste for eating meat for a couple of years now also. I have a bad feeling that my cancer is back. I had some lab work last week but don't know what the results are yet. But, I did get a letter (no phone for now) saying that my test came back abnormal and to come in to see my Doctor asap. But they cant get me in until next week, so I left a message for his assistant to call me, but she never did (this was Monday). I am a nervous wreck and I was hoping you could give me your oppinion of everything so far. I have been fighting for SSI/disability, and am now waiting on an appeal hearing with a judge, for other medical conditions. I was also wondering IF it's possible to get any real indication of my RCC returning or Liver Mets....from blood work and ui. Also, since I can't get in to see an oncologist... if I went to the ER, would THEY order a new MRI? Oh, I don't know if it matters or has to do with any of this... but I went to the ER on Oct 31.2010 because my body was numb and I was having a racing heart beat, plus shortness of breath. They did some kind of lab work and found that my potassium level was extremely low, for which I was given potassium to take at the hospital and also a script. Anything you can tell me would be greatly appreciated.
Sincerely,
Deb
This discussion is related to Kidney Cyst.
I am a 51 year old female. I had a partial nephrectomy for Grade 2 RCC Clear Cell Multiocular Cystic Varient in Jan 2006. Then during a cystoscopy in the spring of 2007 they found a superficial TCC tumor in my bladder that was biopsied and lasered. Over a year ago On my Cancer follow up MRI they found a lesion on my liver that wasn't the normal hemangiomata / hemangioma / cyst like they have been finding on every MRI / CT scan that I've had since my RCC was found. This is from the MRI report:
MRI report it say's "A 9mm lesion within the right hepatic lobe demonstrates T2 hyperintensity and peripheral enhancement of postcontrast imaging and does not meet criteria for hemangioma and remains indeterminate. The portal vein is patent"
Also further down on the reports "Impressions" it says "A third hepatic lesion remains indeterminate and metastatic disease is NOT excluded. Recommend follow-up with MRI exam." From the very begining all my Doctors Said I didn't Need to see an Oncologist". And this time was no different.
My urologist at the time was checking with other Doctor's about whether to do a biopsy, because he was worried that there could be bleeding problems since it was in my liver. Then my Mom was put on hospice care and I couldn't follow up on it. Then I lost my insurance when my divorce went through.
My current Doctor wants to send me to an oncologist but I would have to pay money upfront that I don't have. I'm feeling weaker all the time and have been losing more weight. I don't have much of an appitite and I have lost the taste for eating meat for a couple of years now also. I have a bad feeling that my cancer is back. I had some lab work last week but don't know what the results are yet. But, I did get a letter (no phone for now) saying that my test came back abnormal and to come in to see my Doctor asap. But they cant get me in until next week, so I left a message for his assistant to call me, but she never did (this was Monday). I am a nervous wreck and I was hoping you could give me your oppinion of everything so far. I have been fighting for SSI/disability, and am now waiting on an appeal hearing with a judge, for other medical conditions. I was also wondering IF it's possible to get any real indication of my RCC returning or Liver Mets....from blood work and ui. Also, since I can't get in to see an oncologist... if I went to the ER, would THEY order a new MRI? Oh, I don't know if it matters or has to do with any of this... but I went to the ER on Oct 31.2010 because my body was numb and I was having a racing heart beat, plus shortness of breath. They did some kind of lab work and found that my potassium level was extremely low, for which I was given potassium to take at the hospital and also a script. Anything you can tell me would be greatly appreciated.
Sincerely,
Deb
This discussion is related to Kidney Cyst.
I don't really know how that expect forum works. Some people have problems with it. I am a Oncology Nurse though, not a doctor. Definitely not an expect about insurance/medical coverage issues.
No apologies about rambling; it is ok. :) You have been through alot unfortunately.
Get to the ER if you think you have a better chance. I left the USA to live in France a few years ago and sounds like the medical care situation is a mess, so I am not really up to date with Medicaid, Medicare, SSI, etc.
No apologies about rambling; it is ok. :) You have been through alot unfortunately.
Get to the ER if you think you have a better chance. I left the USA to live in France a few years ago and sounds like the medical care situation is a mess, so I am not really up to date with Medicaid, Medicare, SSI, etc.
I called and left another message today, And they never called back. Really getting frustrated. I also sent my Attorney's office another email asking to try and get me an emergency hearing for my ssi/disibility appeal. (this is the second one I sent them within the last week and no reply. I haven't been able to work since 2006 because of my body going down hill with one thing right after the other starting with my RCC. I was living with my Mom after my husband left me because he couldn't handle it all. But then she became bedridden on hospice care until she died in November. She was supporting me while I took care of her, with help from other family members.
As for the ER, I was just thinking that maybe I could get my follow up MRI like I was supposed to have a year ago. And if they decide that the lesion is cancerous, then I could at least get emergency Medicaid, and then get a referal to an oncologist and finally get stuff done. Even though RCC is a slow growing cancer, I don't know if it still grows slowly in the liver. That's what really scares me. Plus if it spread to my liver, I wonder if it could also be in other parts of my body.
The picture was taken a few days after my nephrectomy in Jan. 2006. My stomach was still very distended from the gas/air they fill you up with so they can get around better to do the surgery.Even though my cancer was in a hard spot to get to, my surgeon was still able to do my surgery arthroscopically. He was a great surgeon...at Portsmouth VA. Naval Hospital. But he didn't have a good bedside manner at all.
Sorry for rambling on....It's becoming a bad habit of mine, lately. Thanks for responding though. When I posted this post I thought I was posting it in the "ask a medical expert" forum. I even tried it a couple more times, but all of them posted to this forum, instead.
Thanks again,
Deb
As for the ER, I was just thinking that maybe I could get my follow up MRI like I was supposed to have a year ago. And if they decide that the lesion is cancerous, then I could at least get emergency Medicaid, and then get a referal to an oncologist and finally get stuff done. Even though RCC is a slow growing cancer, I don't know if it still grows slowly in the liver. That's what really scares me. Plus if it spread to my liver, I wonder if it could also be in other parts of my body.
The picture was taken a few days after my nephrectomy in Jan. 2006. My stomach was still very distended from the gas/air they fill you up with so they can get around better to do the surgery.Even though my cancer was in a hard spot to get to, my surgeon was still able to do my surgery arthroscopically. He was a great surgeon...at Portsmouth VA. Naval Hospital. But he didn't have a good bedside manner at all.
Sorry for rambling on....It's becoming a bad habit of mine, lately. Thanks for responding though. When I posted this post I thought I was posting it in the "ask a medical expert" forum. I even tried it a couple more times, but all of them posted to this forum, instead.
Thanks again,
Deb
Call the office again until you can talk with the assistance or the physician.
I am not so sure the ER would be following up your situation the way an Oncologist would. If they find abnormalities, they are going to tell you to follow up with your regular physician or an Oncologist, so then you are back to square 1.
Is that a picture of your abdomen now?
I am not so sure the ER would be following up your situation the way an Oncologist would. If they find abnormalities, they are going to tell you to follow up with your regular physician or an Oncologist, so then you are back to square 1.
Is that a picture of your abdomen now?
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