Hello
As you know, that gene mutation is extremely uncommon. Thank goodness for modern science and the ability to diagnose it in your husband and children. As you know the presence of chronic atrial fibrillation and atrial dilatation increases the risk of a thromboembolic event compared to someone who has NSR. Clearly, treating with coumadin or returning to NSR would be best for your husband to reduce the risk of stroke. The risks and benefits of coumadin therapy must be carefully weighed in this situation. Its a tough decision given your husband's life style. Hopefully, with time, technology and medications will improve to permit better treatment of this arrhythmia
Good luck and Best of Health
Thank you, have have booked a second consult with another Dr in another clinic. We hope for better news from him. Otherwise we may try flying to see Dr Natale in CA. I have heard he is excellent and has cured chronic a-fibbers.
I pray for more medical info on this mutation in the future, for my kids and grandkids sake as well.
Michelle
Just wanted to add the EP said Franks left atrium was 5.3cm. Thanks for any advice.