That is terrible what happened to you & your mother. I have CFS myself and you wouldn't believe how long it took me to get a diagnosis. I was also misdiagnosed in the past as well.
So how are you doing now ? Have all of your symptoms resolved ? I was on a gluten free diet myself for awhile because many people with CFS cannot tolerate gluten very well.
I had mono/EBV and was told I had CFS and Fibromialgia. Years later I found out I had Celiac all along. Now I'm not sure about the Fibro. I do have pains, and I failed some kind of test where the Dr. checked pressure points. Still I also could have been misdiagnosed with Fibro when it was really Celiac. Maybe it's both! No matter, the gf diet really helps. I wish you luck. So many people are never diagnosed. It's a starting point, right!