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620923 tn?1452915648

MONDAY'S RANT

Rainy days and Mondays always get me down".....so lets rant all day Monday- each Monday a different topic-we will poll for next weeks.....so this week lets do a favorite of mine.....doctors!!


post ur rant and get it out of ur system and enjoy the rest of the week!! and look for a different thread for everyday of the week!!
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3177763 tn?1344537046
Ok, Monday Rant! Where do I start! I will stick with one today and try to limit myself to just one! Lol! :)
Handicap parking! Ok, here goes! I stopped at a store the other day and not for the first time there was a car that didn't have handicap tags or a handicap placard hanging in the window. So, I park my truck, get my crutches and call the police. I give them make model and tag number and while I am on the phone this woman comes RUNNING...Yes, I said running..out of the store to the car. I told the dispatcher that the owner had shown up and ask how long before the patrol car would be there? The woman start apologizing and telling me that she had just run in for a few minutes..and that she had dropped a handicap person off at one of the other stores in the little strip mall as she is frantically trying to shove her crap in the car, mind you the dispatcher is still on the phone! So I ask her "Really? Where is the placard?" she told me she was leaving..."No, I want to know what made you think it was ok for you to drop someone off at another store and then come park in the handicap parking in front of another store when you aren't handicap? It's never ok, If that person isn't with you when you came to this store or any other store and they don't have a placard to hang in the window you have no right to park here."  The dispatcher is giggling at me at this point! The lady apologizes one more time as she jumps in her car drives down to the store where she had originally dropped off her "handicap" friend and miracle of miracles she doesn't park in handicap this time! I told the dispatcher that she had left and had not repeated her lawbreaking parking as before and the dispatcher thanked me as she giggled, and said she thoroughly enjoyed being able to hear someone setting one of "those people straight!"
What makes them think they have the right? Like I told her, I wanted to run in for a minute, but because of her and people like her it was always a problem for people like me!  
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620923 tn?1452915648
COMMUNITY LEADER
Ok...I am sure someone has something to get off their chest.....come on .....lol....
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620923 tn?1452915648
COMMUNITY LEADER
see I forgot this week,.....sorry
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620923 tn?1452915648
COMMUNITY LEADER
ok...posting early so I don't forget.....first one on after me...pick this weeks rant topic : )
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620923 tn?1452915648
COMMUNITY LEADER
Hi Sheila....I think u will get only support of ur statements here...I think we all wish that the drs were a tad bit more understanding....and that they understood chiari more.....but until then it is up to us to educate them in this area.....

There r some really good ones out there....I am sure u will find the NS right for u!!
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1098999 tn?1276787267
My Monday rant today is how inconsiderate and rude NS can be. I feel that they need to be put in our shoes just for one day and see how much pain and discomfort and modifications of our own lifes that we go through on a daily basis. Maybe that would make them think twice before uttering the words...."it's all in your head"...."your symptoms can't possibly be that bad"...."you don't have chiari, you have migraines"....."all your tests came back normal so there is nothing wrong with you"....and my favorite one....."go on an anti-depressant because that will make your symptoms go away".....UUUUGGGGHHHH!
Just once can they maybe take our feelings into consideration before talking and blurting out such nonsense?

Ok I feel better!

Sheila
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620923 tn?1452915648
COMMUNITY LEADER
Ok posting early so I don't forget...first one can pick the rant for this week
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620923 tn?1452915648
COMMUNITY LEADER
I am still holding u to being good....but, I can't wait to see pics of some of the things u made.....I want to learn how to work on a lathe.... : )

I am sure there is some small project u can do...do u whittle?


"selma"

PS- I am watching  8 )
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Avatar universal
Oh Yes, Selma I've done many things over the years to put food on the table. Some which hopefully will happen again soon. Some of my favorites are custom wrapped fishing rods not just a rod but wrapped artistically, woodworking hey we love making all sorts of things but my personal love is using different contrasting woods to make a few pieces of wood into an artistic useful thing. Most people don't even know that there are over 300,000 know species of wood in the world. Or for that matter how many species of each different sort of tree there are, like one of my many favorites is Purpleheart. Down in the southern states, in the UV, this wood turns a vibrant deep purple. Yet even combining different pieces of purpleheart can give the eyes a treat because there are 27 different known varieties of just this tree and they are each different shades of purple! Before loosening my legs I um well played with electronics for folks and worked on clocks for fun. Worked as an electrician.... miss that more than anything even more than my legs. Racing, 4 wheeling well they used to be fun now that sounds like work. :-) Fishing now that's still fun.......... hummmm must have chiari as I totally forgot where this was going. Oh well, I’ll post it for your laugh until we figure out how and which Dr gets to have the first capisian lp injection.

BTW- Lathe, yes, that is one of the most relaxing things. Looking at an old stump or tree and picturing what's inside and then when you see the grain pop... wow! Now selma you said you where going to hold me to being good! This is not going to do it! Must not remind me of the two lathes and all the exotic wood setting out in the shop. Many bd ft of hardwood just waiting.... :-)
Wolf
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620923 tn?1452915648
COMMUNITY LEADER
LMAO...CW u always can make me laugh and I am going to hold u to it to be good.

Wow...I didn't know u did woodworking...my Uncle was a wood carver..did beautiful work...was going to carve something for me and he got sick and has since past away.....but he made so many things...I love the smell of wood...do u have a lathe? They fasinate me...but please wait till u r better to get into working....I know how hard it is to not be creative when u r a creative person.....

I hope the ride got all that out...keep the window open...lol

"selma"
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Avatar universal
Hummm..... wonder what a little cayenne pepper in an LP would do for the sensations in their head... Also we must find a substance that will show on their MRI as an incidental finding..... That way when we transport this substance into their noggin it won't show on an MRI...

Actually I"m allergic to most antibiotics and some opiads. But perhaps my biggest allergy these days is Chiari and the stupid Be still take it easy thing we're supposed to do post op. Don't worry Selma I'm being good, just don't feel like it today. I've run a woodworking shop on the side with my boys for a couple years. The last few days my mind has been screaming to go do something creative. My wife is saying "we'll I'll help you" she means it but .... some of these dense exotic hardwoods that I use are quite heavy. She can't lift em and right now I know I shouldn't. Thus we'll just work on a way to make this virus a reality! Well actually no guess it's time to pick up my son, maybe I'll ride along and get this dastardly deed out of my head. :-)
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1063386 tn?1287878569
wolf  that is too great.......there is one way  get them to take topamax and induce migraines in them.     and while were at it  stuff a sock in their foreman magnum and pump there head with extra csf.    

my husband got his first migraine the other day and I think he suddenly got a new appreciation for how I feel.   empathy over sympathy  alwayas better


and I think I have developed an alergy to house work.   Yesterday I cleaned the entire downstairs and today I am bad bad bad.........dizzy, pain, pressure, weakness, blury vision with no focus.  (good thing I can type without loooking  lol)

so  I would have to say no more house work.....
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Avatar universal
Well, I'm not normally a complainer but....

I'm developing allergies to the cold. It effects/affects me in very negative ways anymore. The neck cramps are really getting bad so IT must be an allergy to the cooler temps.

I've also determined that I'm extremely allergic to Chiari and it must be annihilated. We must develop a mutant virus what will cause the empathy defunct percentage of the 'medical community' to have our chiari symptoms transferred into their heads for one year. Then the virus will mutate and self destruct once these people learn empathy from the things they have suffered. Yeah... now where are them there test tubes must get to work on this virus immediately!

Wolf
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1063386 tn?1287878569
just thinking about it makes me itch...........that is no fun when you have to add meds to be able to take other meds.     I really hope you can get some relief.   try cortisone cream too topical   it doesnt have the sleepy side effects that benedryl has
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1052624 tn?1255795247
Hi Selma. It ***** when that happens. Horrible to be that miserable! I hope you get some relief SOON!
I had taken medrol dose packs and vicodin for years when all of a sudden I was ending up in the ER with reactions.
Can't tolerate any of the steroids anymore or anything related to opiates.
With one shot of solu medrol, I itched like crazy from my scalp to the bottoms of my feet for 24 straight awful hours on IV and PO Bennie. Then 2 weeks later I was given my regular pre med of Decadron before a typical 5 hour IVIG infusion and my face blew up with my throat closing and an ambulance was called and I had to be admitted. Scary!
Prednisone broke me out with a red dot rash after that. I looked so funny. But the breathing thing was the scariest.

No, I won't let any doc ever give me any of these drugs again...but I had taken them for years w/o problem. My Immunologist told us he thought it was an immune response to what was happening with me at the time, but who knows?

I wish you an itch free day!
Hugs,
Donna



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999891 tn?1407276076
Good on ya…..don’t make a habit of it though LAMO
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620923 tn?1452915648
COMMUNITY LEADER
Hey Ray I can complain with the best of them,....lol.....I started this thread for  a reason..so I can rant every once ina while : )
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999891 tn?1407276076
Hi Selma,
I have developed a rash on the palms of my hands over the past few months that my NL feels could be due to the Syrinx or some other CM related complication, it is not painful but as I have very little feeling here anyway this dose not surprise me lol. I am due to see the NS tomorrow week so I will say it to him.

this is a first….you complaining…..shocked lol

I hope you feel better soon my friend, keeping you in my thoughts and prayers.

Ray
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620923 tn?1452915648
COMMUNITY LEADER
Just developing allergies to meds...ugh.....last yr it was oxycotin and now penicillin type antibiotics.....no fun .....I hate all the itching......thought it was better last night...but it all came back this AM.....so back to taking benedryl.....

neone else developing allergies to things u were never were allergic to b4?
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620923 tn?1452915648
COMMUNITY LEADER
...here is this weeks rant thread...first one can pick the rant topic.....get it all out : )
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620923 tn?1452915648
COMMUNITY LEADER
LMAO....it might not have made u laugh to recall and vent, but it sure made me laugh...lol.....and it is good to get rid of bad vibes.....lol.....thanks : )
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1068968 tn?1256169388
WORK - UGH!  
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847512 tn?1272567062
ok maybe that wasnt such a good story to read for someone who is about to have surgery on thursday!!!` ahhh!!! lol OMG
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997898 tn?1303734864
cw~  you're on a roll tonight!  lol!  i love it!!!
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