Hi Shan and welcome to the Chiari forum.
May I ask were ALL related conditions ruled out? Since your opening is large and I am assuming you do not have a CSF obstruction...
Vertigo can be due to a few related conditions and not just Chiari.....so regardless of having Chiari it could be something else.
Did you have a MRI after the MVA? Any Xrays?
Related conditions would be - obstructed CSF flow..Syringomyelia , POTS, ICP, CCI, BI, Sleep apnea, Ehlers-Danlos Syndrome, tethered cord.......
Many of us are DX'd with fibro as I was as well and later found it was the EDS and not fibro.....I also was told I had markers for lupus....still never DX'd.....
POTS=Postural Orthostatic Tachycardia Syndrome is a form of dysautonomia that can cause blood to pool in the lower extremities...BP to drop or rise with changes in position.
ICP= is the pressure inside the skull and thus in the brain tissue and cerebrospinal fluid (CSF).
CCI=Craniocervical Instability, also known as the Syndrome of Occipitoatlantialaxial Hypermobility, is a structural instability of the craniocervical junction which may lead to a pathological deformation of the brainstem, upper spinal cord, and cerebellum. It primarily occurs in patients with Ehlers-Danlos Syndrome and other hereditary disorders of connective tissue.
BI=Basilar invagination is invagination (infolding) of the base of the skull that occurs when the top of the C2 vertebra migrates upward. It can cause narrowing of the foramen magnum (the opening in the skull where the spinal cord passes through to the brain). It also may press on the lower brainstem.
My Chiari specialist knew and educated me on EDS and many of these related conditions....his office did the testing for them and I was referred to the top EDS Dr on the East Coast.....
Not all big name clinics are the place to go as they are not known for Chiari or the related conditions....you need to find a Dr that specializes in Chiari and related conditions.
What area do you live in?
I know just how you feel...hang in there...I am posting Drs in states up in your area....keep in mind they may not all be true Chiari specialists and you need to research them, this is only a starting point.....this list was compiled by members of Drs they have been to, treated by and liked.
Ninth & Jefferson Bldg
908 Jefferson St 5th floor
Seattle, WA 98104
Dr. Gregory Foltz
Dr David Adler
Emanuel and Providence
Colunbia Neurosurgical Assoc.
1040 Northwest 22 nd Ave.
Dr. Yashail Vora
Mt. Talbert Medical Office
10100 S.E. Sunnyside Rd.
Clackamas, OR 97015
If you would like more state options please list which ones and if we have a listing for that area I will add to this thread.
I have always had foot issues too...I had one Dr tell me I had tarsal tunnel and had surgery only to find out later it was Chiari and EDS and not tarsal tunnel......
This is why it is so important to have ALL related conditions ruled out as they have so many symptoms that can be Chiari or this or that....it is hard to know what they are from since they are so similar....
One day at a time, and keep pushing for answers you will get there.....
I can tell you of another common but rarely diagnosed condition that I have that can cause vertigo, brain fog, memory problems, and often shows up after traumatic injuries. It's called May-Thurner Syndrome and I can tell you doctors have no idea the problems it can cause the whole body. I had a stent placed recently and almost immediately ally problems dissappeared.