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Chiari Malformation Community
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Avatar universal

17 months post op pain - should I talk to dr b again

I am 18 months post op and the tonsils were sitting on spinal accessory nerve which was relieved from surgery. I was told 12-18 months for nerves to regenerate and pain to subside. Well pain is still in my back and shoulders, can't lay on back of head and neck goes numb, dizzy and nauseous when I lay on my right side. I hate to complain so seeking advise on whether I should contact dr again. Working is difficult with the pain and afraid I will lose my job- is all of this still " normal" or should I talk to the dr? Any help is appreciated
3 Responses
Avatar universal
Hey fro, I'm sorry you're still dealing with post op issues too. Have you been back to see him since surgery? It sounds to me like a phone call is needed. Maybe you can make an appt to get checked out.

I know it takes a long time to heal from this surgery and patience runs thin when you feel so bad. Speaking from experience there too....

I'm also 17 months post op and recently been diagnosed with intracranial hypertension and it's just been worrisome and trying.

i hope you can get some answers. Good luck
1 Comments
KerriC1
I am sorry you r having trouble as well- what r u doing about condition- what do the drs say- I hope u get relieve soon- we need to stay strong but I know it is hard- let me know how u r doing
620923 tn?1452915648
COMMUNITY LEADER

  Hi , I agree a call to the Dr is advisable......but am curious as to what you do at work? What your daily routine is.....sometimes what we do post op can affect recovery and possible cause set backs.

It can take a long time to heal and that depends on you and how you typically heal and your activity levels.....plus what other possible related and non related conditions you might have.

You may continue to see benefits for years after this surgery....it is not as quick to see or notice as some of us would like.....

I continue to have periods where I do not like to lay on my incision....so you are still too early in recovery to think that is an issue....but the whole neck and head going numb and the nausea and dizziness are a different story....you could have an impinged nerve or a CSF leak....no way to know...when was your last MRI?
1 Comments
Selma thanks for replying - last MRI was 2 months after surgery and all looked good except my spinal canal was severely pinched at c5 and c6. Dr said at the time that he would have wanted this fixed before chiari surgery . I also have trouble holding my head in right position. I was told to wait 18 months but I am running out of ability to deal with pain in shoulders and back. The numbness in neck does subside when I do my exercises- every night btw. If I lay down most of the day I feel less pain but I have to work. I am a director at a company and try to work 10 hrs per day- I barely get home due to pain. I will write dr but I was told my symptoms have to be different and they are not- thanks for your advise- I would be no were without this site. I now know I waited too long for the surgery -I had a good dr but all of the others before did me no good- I now believe all my symptoms were related- thanks for taking the time
620923 tn?1452915648
COMMUNITY LEADER

  Have you tried a cervical brace? It may help hold your head in the correct position and help with the pain...just a thought.
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