I'm a 30 year old woman, in the uk. Having occasional headaches this year but since July I've had a daily throbbing headache at the base of my skull, which radiates into my scalp and the back of my right eye. In September this increased also to facial numbness, difficulty sleeping, tingling in my hands and tinitus. On an admission to hospital in october a neurologust saw me, felt it was chronic migraines (without triggers) but did an MRI brain. This showed -
Cerebral tonsil herniation of 4mm below the formentum magnum - in keeping with Chiari Malformation.
I saw the neurologist 2 weeks ago, she said her specialist radiograpger has checked it and doesnt consider chiari malformation. Classing MRI as normal, just with a low lying cerebellum.
Traditional painkillers and nerve painkillers aren't easing my pain. I'm utterly fed up as I can't work like this. Functioning on 3-4 hours broken sleep. Neurologist wants me to try Topiramate for my "migraines". As a nurse I'm not keen on this. I'm seeing a neurosurgeon specialising in Chiari next week - my gp wanted a second opinion.
Has anyone experienced similar frustrations?