It has been 5 years since my Chiari decompression surgery. In some issues there was great relief (vision, ringing in ears, passing out randomly, electric shock in my neck and a form of seizures) and others not so much ( dizziness and headaches). However, about 2 years after the surgery things really started to take a turn for the worse. I started having issues with speech (mixing words together and making them one word) my memory ( forgetting little things like turning off the water when I washed my hands) my neck became less turnable(?) My hands and feet were not communicating with my brain resulting in dropping things and tripping over air. Now 5 years later and you wouldn't be able to tell I have a college degree. I CANNOT complete sentences with my thoughts without my husband's help. (I say it's lost in translation because I know what I want to say but can't) I am SO easily distracted that it's hard for me to compete tasks. Mixing words has become a game with my family like LINGO (it really hurts me) I started having more intense ringing ears, I have intense electrical shock feeling that now goes from my neck to forehead and down my spine, I started having seizures again, I have no balance and passing out is a normal part of my life again. I can't read for very long because my vision blurs, my shoulders, neck, and back cause me pain daily. I sleep 3-4 hours a night because I have so much pain. We only have a few Chiari specialist in Michigan so getting an appointment is a pain... It has taken me 6 months to see him. Now I had an MRI (just a regular one) because I have complained constantly and it showed my Chiari was back ( tonsils had dropped and are again blocking the spinal cord). My neurologist asked to have CSF flow study done which showed an area that was narrowed cause the fluid to back up. I went to see him today and...... He said because there was no success with the first surgery there was nothing he could do. SOlomon what about the blockage and most importantly WHAT ABOUT ME! My questions are ( his office is the only ones I know of and can find) where do I go from here? Does anyone know of Chiari specialist in Michigan not at the U of M? Does anyone else suffer with these issues or am I the only canoe in a lake of kayaks?