I was in a car accident in 11/2013 and have been dealing with all types of symptoms since then. Mostly with my neck and head. Sever pain in my neck and at times severe headaches with other symptoms I will list below. In July of 2014 I went for a cervical MRI...The conclusion from the report:
1. 4mm AP right-sided herniations at C4-5 and C5-6, with cephalad extrusion at C4-5, causing moderate right-sided central stenosis/cord compression at both levels. Also, 3mm AP right-sided herniation and osteophyte at C6-7, with no other high-grade central stenosis or cord impingement.
2. Findings cause moderate to severe foraminal stenosis bilaterally at C4-5 and C6-7 and on right at C5-6, with impingement upon/compression of both pre-/intraforminal C5 and C7 and right C6 roots, which is chronic on left at C4-5 and at C6-7.
3. Chiari type I malformation, with tonsillar ectopia to 10mm below the foramen magnum, no mass effect on the cervicomedullary junction and no cord syrinx.
4. No facet arthropathy, fracture, osseous neoplasm or infection and no myelomalacia.
So far, all of the doctors I have seen have focused on my neck. Nobody wants to talk about the Chiari. I've seen an Orthopedic Surgeon who wants to do a C4-C7 fusion of my neck (front and back), which I don't want to do until I can find out more about the Chiari and try to determine if the symptoms I'm experiencing are coming from my neck or the Chiari or both.
I live in Wisconsin on the Minnesota border (grew up in MN). I just finished writing a letter to the Neurosurgery office of the Mayo Clinic. I'm trying to get in there hoping to find out more about the Chiari and what is causing the symptoms. I have to send the Mayo a CD of my MRI and MRA images, they review them and call you for an appointment.
Here is a paragraph from the letter I'm including for the Mayo:
The major complaint I have are the headaches and neck pain. The headaches range in severity. The worst pain/headaches are definitely a 9 on a pain scale, the pain in my neck is very bothersome, I get a weird “helicopter” sound in my right ear, the ringing in my ears is more pronounced and I have uncontrollable facial spasms, I feel very anxious and with these types of headaches I get very nauseous and most times throw up.
At other times and most common I will experience what some might call a tension type headache, the pain is at the base of my skull, feels like I was kicked in the back of my head. Other symptoms I have are: A swooshing sound in my head (can be turned on/off my turning my neck, can hear it on both right/left side) constant ringing in my ears, facial tingling (left sided), facial spasms when I get a “bad” headache, trouble focusing, fatigue, anxiety, balance problems, dizziness, when walking I have an electrical sensation that starts at the base of my skull and travels down my neck, to my shoulder blades and out through my fingertips, numbness and tingling down both arms, more prominent on left side. At times I feel like my throat is closing, my voice gets horse, and there are times where I feel like I can’t swallow, I really have to concentrate on swallowing to make it work. There are times where I feel drunk, usually on a daily basis. My joints hurt, I have swelling issues with my feet and calves. I try very hard on a daily basis to not let my symptoms been seen by others, on the bad days it’s harder to hide what my body is going through.
Do you guys think I'm going in the right direction? Trying to get seen by the Mayo? Does anyone know of any Chiari Specialists in Minnesota in case the Mayo won't see me?
Thank you for sharing and for the knowledge! It's comforting to know that your not alone because with the symptoms sometimes you feel crazy and trying to explain it to someone is really hard.
Have a great day and I thank you in advance for your advice! :-)