So sorry you are having to deal with all of this....but know it may not be the Chiari directly or surgery related issues you are having....it could be a related condition like EDS....not that it is a good thing, but may help if it does not lead back to a 2nd decompression surgery....
Hang in there , try to keep positive and update here when you can.
Wish I had better update as well! It is what it is.
No it wasn't until just recently with a new nl it was discussed.
I can see with the spasms someone would go to ER. So painful!
I've never had a spinal mri! Scary huh?
I've had to resign from my job. So now I have insurance that is crazy pricy. New nl really wants that spinal Mri.
Gonna have to wait till 2016.
Hi and welcome back....wish you had a better update ....
EDS can affect recovery for sure.....and I have been DX'd with a neurogenic bladder....but I also have tethered cord which can also affect the bladder....
I have had issues and went to the ER with what I thought was stones of some sort as well....many muscle spasms too....
Did you not have EDS ruled out b4 surgery?