What we do here is blogging, and many of us have a journal here on MedHelp that u can access... click on my name to read about my surgery.
many of us do this, so others like urself can easily find our stories : )
I keep a Chiari blog where I upload pictures and information about my appointments, experiences, and Chiari in general. I do it for my friends and family members. I already keep a blog on SIDS so I just linked them together. Keeps me busy. :-)
I too have journals and lots of pics post op:)
Thanks guys. I'll definitely go take a look when I have a bit more time...or when I'm recovering in the hospital and actually have some quiet time. lol. Right now I'm trying to keep life as normal as possible. For the next 4 days at least.
I don't have mine with med help because I don't just muse about this (since I just found out 2 weeks ago...lol) but it's been a big subject for me lately.
No worries...do u have ne direct questions we can help with b4 ur surgery on the 10th?
I know we have a list of things for the hospital...tips and what not....
so let me know, and we will do our best.
Do u have someone able to post updates?
Yes, my blog is at: dysmotilitymountain.com. Fyi only at beginning stages but have links thru gravitars with another health blog. kk.
Hi, kkluv,
It looks like you found our journal feature here too (
http://www.medhelp.org/user_journals/index/10588019?personal_page_id=4727283)! Hope to see more of you around here, and keep us updated!
Claire