So I have been in and out of the hospital over the last month after my eye doctor discovered papilledema and hemorrhaging behind my eyes. I followed up with my Chiari specialist on the 18th and we scheduled my surgery for the first week of June, but then I ended up back in the hospital a week ago with extreme headache, vomiting, neck pain, plus I was practically comatose for 3-4 days beforehand.
Of course the symptoms are related to my dangerously high intracranial pressure, and of course my neurosurgeon is out of town AGAIN. So an entire team of neurosurgeons from the same practice took over my case and decided to schedule surgery to insert a shunt this Friday. I had just asked my NS, the CM specialist, about getting a shunt and he said no. His reasoning was that only the decompression surgery would fix Chiari related intracranial hypertension and that I have very small ventricles.
I can't imagine that an entire team of three neurosurgeons would decide to preform a surgery that I don't need, but I keep reading about how shunts are placed to decrease the size of the ventricles and that over draining them can lead to collapsed ventricles and hemorrhaging.
I'm so scared that they might be going about this the wrong way. Any advice would be greatly appreciated.