Hmm...did they do a MRI of all areas of the spine? Thoracic and lumbar along with the cervical...I am assuming which I should not that the MRI that did not show a syrinx was of the cervical spine,....but we can have them form in the thoracic and lumbar spine too.
The odontoid bone is the one that holds ur skull above the spinal cord....it should have a natural curve to it just like the lordosis of the cervical spine, but it can be retroflexed or turned or curved the wrong way causing the tip of the bone to press into the brain stem...
My odontoid was not turned completely around the wrong way, but enuff to cause CSF obstruction along with my minimal herniation...and in turning my head it would cut off CSF flow and cause Drop attacks along with many other symptoms.
I just wonder if this pressing may be what u feel as heat or burning....
So did you have any kind of treatment for it? As of right now we are trying to treat my headaches with medication to see if that works. So far it hasn't. Then he said we would try a nerve block. He is very thorough with everything before he suggest surgery. And believe me, I am perfectly fine with finding something that helps!! I do have to have a cine mri in November.
For the loss of cervical lordosis, yes, I had PT this was yrs b4 I knew about my Chiari bcuz they did not do MRI's back then...only xrays....so they knew my neck was way out of whack.,..the accident happened when I was 15...so it went yrs b4 it was dx'd and then treated....but PT did help.
Actually a Chiropractor helped me...again this was yrs b4 I got my chiari dx....so I had no idea then...but it did help with my other issue and it was able to be seen on MRI the improvement....so I know even after yrs, it can be helped.
I am not telling u to go to a Chiro as it is not good for Chiarians....but, with the right PT and as long as they leave ur head and neck alone they can work on those muscles in the shoulders to help with the lordosis issue.
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