Can't believe it!

[soccero]

I couldn't get in to see dr weingart untill jan 13 but they called today and said they had a cancellation to Thursday wahooooooooooooooo!
Molly

[selmaS]

HI Molly...sorry I missed ur post on the visit...I am not feeling well....and was MIA all day yesterday....

There r way too many drs NS that feel like that, once u have surgery u r fixed or cured...and we know that is not right....

I pray he handles ur shunt diff...and u r able to move forward and feel better soon.

"selma"

[soccero]

thieb9 ur info might be right he just has a different idea about chiari he was a very nice guy. And thank u guys for the support.
Molly

[thieb9]

Guess my info was wrong. Hopefully you can get everything worked out and be on your way to feeling better soon.

[pamk5]

I know it just *****!! I hope you find relief soon.

[soccero]

thanks pamk5. It just ***** cause I've had three surgeries for chiari and he is not even sopose to be adreesing the chiari asspect, see I now have intractainal hypertention or pseudo tumor ceribri and he was just sopose to evaluate me for a shunt. But it just ***** when dr tell u info u up is wrong.  
Molly

[pamk5]

Hey Molly sorry you had a bad day.  I was told that by a NS that does some surgeries but he isnt a specialist.  He has been practicing 16 years and has only done about 100 surgeries.  Thats like 6 a year.  100 may have been a nice round number for him to pull out of his hat too!  

Anyway, you arent alone with the stress of trying to find treatment with this illness.  I hope tomorrow is a better day!

[soccero]

it wasn't a good day and I'm pretty upset. I'll write about it tomorrow cause today was a long day. Also if weingart is a specialist on chiari he ceartainly has an intresting veiw on it "once u have had the decompression ur fixed"  his words not mine.
Molly

[burdzmom]

whats going on Molly??? i see your upset and hope that everything went okay at JH
(i believe it was today . . . . .) was thinking about you.

XOXO
jilian

[thieb9]

He is a specialist

[chiarilmt]

Thank you for that information.

[soccero]

he's at johns Hopkins in Baltimore I'm not sure if he is a specialist or not.
Molly

[chiarilmt]

May I ask where this Dr. Weingart has his practice at?  Still looking for a chiari specialist.
Thanks

[soccero]

thanks everyone. And I'm glad u heard good things about him but he's doing my shunt surgery kinda unrelated to chiari but I'm glad he now about it!
Molly

[Abbydabby36]

I am THRILLED for you!!!!!!!!!!!!  Keep us posted, Please!!!!!!!!!!!!!!!!!

[thieb9]

Good luck! i have heard many good things about him. I had my surgery there and from talking to the nurses, chiari and chiari related surgeries are not uncommon there, (a few nurses told me they see roughly 20-25 decompressions there a week) and most of the regular  nurses knew more about chiari and the things we go through not getting proper help, than my primary doctor did.. I hope this makes you feel better about going there.. I loved it... and from what I hear Dr Weingart is a Chiari Specialist

[n40066]

good luck molly...you're in my prayers more than you know!

[selmaS]

u have an angel on ur shoulder : )

"selma"