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Chiari Malformation Community
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1069888 tn?1421940341

Cavernous Hemangiomas...???

In my older MRIs it lists, among other things, that... Re: Lumbar Spine:  "...  There is a 12mm cavernous hemangioma on the L2 vertabral body." Another states, "... There is a 16mm cavernous hemangioma in the T11 vertebral body and a 9mm cavernous hemangioma in the T6 vertebral body.  Thereis no associated vrtebral expansion and these typically have no clinical correlates."

I understand, through research that a hemangioma is likened to a strawberry birthmark, and is a complex bundle of blood vessels.  A cavernous hemangioma is then like having one of these within your body... and they can happen in many different locations.  I also understand that the problems usually occur if any of these vessels break.  It does identify these as a "benign tumor" however, so I am curious...  Does anyone else have these?  Have you experienced symptoms from them?  What has been done with regard to them?

Since the problems I have pretty much include my entire back, I am just wondering if I should discuss these, along with the Chiari, with my doctor.

I appreciate all of you!  Blessings!
21 Responses
620923 tn?1452919248
COMMUNITY LEADER
Hi we do have a member here that had one and surgery for it as well...I will notify her to contact u.

"selma"
997898 tn?1303738464
welcome to our chiari family!  it's only my opinion, but i would take all your old films and reports with you.  in my own personal experience, which is limited, i find the drs are much more interested in the film, then the reports.  if you have a dr. that wants only to review the reports, you are not with the right dr. and def. not with a specialist!!!
1069888 tn?1421940341
Thank you, Selma!  I have been on a scavernger hunt to get as many of my records as possible from when all of this really got bad.  (It was just after an auto accident, btw.)  Now, that is not saying (knowing what I know NOW) that this was the onset of symptoms... just when they got really bad.

The hemangiomas are something I am just reading about.  They're just another one of the things listed that I was never told about.  And armed with the understanding and support of all of you here, I trust your judgments much more than I trust any of the doctor's judgements... at least the ones I have had so far.

Going back to a previous doc tomorrow to see if he will order the MRIs Dr. Batzdorf has requested.  Keep your fingers crossed for me!  (And keep it in your prayers that God would lead this!)

Thanks and Blessings!
620923 tn?1452919248
COMMUNITY LEADER
U r welcome...I will see if I can get teh member to contact u tonight.



Good luck tomorrow

"selma"
1069888 tn?1421940341
Thank you!  I agree... but all that is available now are the reports.  They are from 1999.  I am in the process of trying to get a local doc to order the MRIs that Dr. Batzdorf (at UCLA) needs to evaluate whether or not he will take me as a pt.   (In fact, I have spoken to several chiari specialists... all who want the same.  So no matter what, in order to move forward with a specialist, I have to have these new MRIs.)  Dr. B only requested MRIs of the brain, cervico-cranial junction and the cervical spine.  I may even go ahead and try to get them to do a CINE MRI as well.... but if there is resistance, I won't press my luck!  ;-)

Blessings!
997898 tn?1303738464
lol!  boy!  you've really done your research!  good for you!!!  best of luck to you and keep us posted on your progress.  you'll be in my thought and prayers...
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