I think it's because a condition like MS has symptoms for all who are diagnosed with it. But with CM the majority have no symptoms or mild symptoms and be unaware they have it.
Watch this space. My 14 year old with CM is an aspiring Actor and Singer. :-)
I dont know if this statistic is an estimate or if this is the amount of people who have been actually diagnosed.
If you ask someone do they know what MS is they will have a good idea, if you ask them about CM they will not have a clue. This is due to lack of awareness.
When the vast majority of GP's/family doctors dont know about CM then what hope have the general population of knowing....
Yeah..that it kind of strange..but then again, MS is a much more common disease (in comparison).
It would certainly help to have a celebrity who has CM and would bring it into the spotlight..of course, I would wish that on anyone though..
It's strange...because my neurologist said symptomatic chiari has a prevalence of 1/1000 and MS is like 1.5/1000...both near the same. But yes as far as familiarity much different. My neuro said she thinks its because after the surgery most Chiari patients become remarkably better while MS patients become worse. She said MS is much much worse...I don't know???
Nov 10, 2007 ... The daughter of the late and great Man in Black, Johnny Cash was diagnosed a while ago with the debilitating disease of Chiari Malformation.Roseanne Cash is recovering at her home in New York City after having brain surgery for a rare, but benign condition called “Chiari Type I malformation.
I like the report, rare, but benign.,..really then y did she have surgery????
It is strange that it's not one of the "known" conditions. I only heard about it when I was watching a medical documentary. It said that it is far more common than people think. If this is the case, why is it not checked for more often? I've had to ask specifically for the test, as when I saw the program, it was like a light switch went off!