Well I do not understand that as they cauterize and even remove the cerebral tonsils for some where it is deemed necessary.....
Mine were cauterized to shrink them.....and mine were not huge by ne standards.....but they were causing an obstruction.
Sorry I forgot u r in the UK....and they do things diff there....ask if they would forward them to a Dr in the US for a consult. Worth a try.
Thank you.
They are sending their diagnosis and a write-up of the meeting.
I can't remember the name of the malformation, but from what they said, it sounded like it was undersized, or under-formed.
I would request a copy of my MRI, but i don't think the NHS does that, they have referred me to a psychologist to do test on how the problem has affected my capabilities, then using what they find, i will be sent to a specialist psychologist with most skill and experience with my problems.
They intend help me find ways to live my life around my memory problem, as they can't fix it.
Hi and welcome to the Chiari forum.
DId they say what type of malformation the tonsil has? I mean if it is herniated it can pertrudes below the foreman magnum and it can obstruct CSF flow...even tho it may not be a chiari malformation u may have the same symptoms if the flow is disrupted.
Do u have copies of ur MRI and the report? Many Drs do not take Chiari and related issues seriously and feel that it can not have an affect on us since it is congenital.....
If u do not have copies of the MRi's do request them from the facility that did the studies and do so going forward with all testing.
There r many malformations of the tonsils some r elongated, some r peg like and it is the short wider ones that can cause more issue than the longer thin ones,,,, so more info is needed.