I have a permanently clicky gratey neck, just as described here, moderate but permanent duzziness, occasional pressure in ears, no headache but occipital bone feels clamped. If I too my head back feel pressure at the base of my occipital bone. Also nausea, and proper chronic fatigue. I have been diagnosed with ME/CFS but had symptoms including exercise intolerance and dizziness since childhood. So no sudden onset.
Now I haven’t been diagnosed with a chiari malformation and the only reason I know about it is that my sister’s King Charles Cavalier has one. He take garbantin and it works for him!
But I read about a doctor with ME/CFS who was diagnosed with a Chiari malformation based in his interpretation of his symptoms. He had similar symptoms to mine. But I may as well have a label saying ‘malingering hysterical hypochondriac - do not heed’ on my forehead so wary of going to a doctor. On the other hand if I don’t return to working at least three days a week I may lose my home.
I have been to an osteopath and Chiropracter and been clicked every which way with little relief.
A part of me thinks it may be worth checking out and risking the shameful treatment by the GP. But it seems such a rare condition so wonder if you would be kind enough to advise.
It’s judting reading this thread sounds so familiar.
How did you find out about your condition, and am I just indeed a malingering hypochondriac.