I have Chiari 1 Malformation, and nocturnal epilepsy(meaning I only have seizures in my sleep, but every time I have one I stop breathing) 3 years ago I was talking to my neurologist and they mentioned the Chiari Malformation decompression surgery, and now it is being brought up again. I have a 6 year old son and a 2 year old daughter and I'm terrified of something going wrong and me not waking up. My husband is trying to be as supportive and reassuring as possible but I'm terrified I wont make it. Anyone have someone who didn't make it? What was the cause? any one have a good outcome? With me being epileptic I am absolutely terrified.