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Chiari Malformation Community
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624074 tn?1263873807

Chiari Awareness Ribbon

Just wondering.  Is the Chiari awareness ribbon color a lavener or a royal purple color?  I've seen them both.  The one with the zipper on it that says Chiari is lavender, so I'm assuming that the "official" awareness ribbon for Chiari is lavender.  Just wondering.  I would like to start raising awareness in my area and make some bracelets, but don't know what color charms to buy.  Also, sorry to flood the board with my questions.  I sit at home all day with all of these questions in my head, so I post all day.  Hope y'all don't mind.  Thanks for your help and all of your patcience.
16 Responses
620923 tn?1452915648
COMMUNITY LEADER
It is the same as Fibromyalgia...purple.

I will locate the chart and let you see it.....I have a friend who has been making the jewelry for chiari and I can PM u a link if u r interested in seeing what her's look like.


"selma"
624074 tn?1263873807
That would be great!  TYVM
620923 tn?1452915648
COMMUNITY LEADER
I posted a pic of the necklace Laurie gave me......there is a link to the pic on the right.
555358 tn?1292532061
Umm, I'm a guy, there's a differance between Lavender and Purple?

:D
620923 tn?1452915648
COMMUNITY LEADER
uh yeah....one is more pastel of the color while purple is darker...lol...   : )
Avatar universal
I never knew there was a color for chiari.That is very interesting to find out. I looked at your necklace. It is really nice.
Chadry
906843 tn?1245208894
WOOO HOOO ok folks as you all know purple is the royal color, oh wait, does that mean we are royality or does that mean chairi is a a royal pain in the neck?
921053 tn?1245180795
I would say that we are "royalty"!!!!  Although this is a rare condition and we would rather not have it, we have been chosen as the few royal ones :)
992677 tn?1537668903
Do you still have the chart mentioned above? Or know where I can find an accurate one?

CW
620923 tn?1452915648
COMMUNITY LEADER

  Hey CW how r u and the family? I pray all are well....ur son getting to the bracelets?

Here is the link to the Chart -

http://www.disabled-world.com/disability/awareness/ribbons.php#purple
5264571 tn?1367801867
It's darker purple. There is a support group who claims to raise money for Chiari yet if you question them they send you suit letters from their lawyer- any non profit you should be able to ask for their funding records and they oblige ASAP. This goes for ALL non profits.
992677 tn?1537668903
Well not really. However, since this cancer surgery I've been stuck home for the most part so I've started doing a few things with the paracording.

Thank You for he link!

CW
992677 tn?1537668903
Humm... Was thinking of doing one for myself with colors for different issues. HA! Would have to do a necklace! Not enough room on the bracelet.
620923 tn?1452915648
COMMUNITY LEADER

  LMAO...same here or just several diff bracelets.....

No worries...know I have u and the family always in my prayers <3

Miss u bro.

sis
992677 tn?1537668903
Will be around a bit more... not sure how much. But at least feel up to using the computer again. Working on social networks and a website for the thing we spoke about now. At least should be checking in more...

Just so nothing else goes haywire! :-)

CW
620923 tn?1452915648
COMMUNITY LEADER

  CW...wonderful and sending prayers for nothing haywire to happen : )



I want the link when u get it all set up : )
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