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Chiari Malformation decompression & after

I have had the decompression surgery but now feel my Chiari symptoms are coming back.  The ct scan showed everything is fine - has anyone else had this.
5 Responses
620923 tn?1452915648
COMMUNITY LEADER

  Hi whatfun and welcome to the Chiari forum.

May I ask what all was done during your decompression? Laminectomy, dura plasty? And were ALL related conditions ruled out b4 surgery?

Lastly how long since your surgery?
1 Comments
A dura patch was put in then contracted meningitis then had a vp shunt put in I think I am 1 year post op thanks
620923 tn?1452915648
COMMUNITY LEADER

  Do you know what type of dura patch was used ? Many that have developed similar issues to you and had a shunt place found they had EDS after the placement.....if you do have EDS it could explain the issues you are having.

If you are one year post op, have you had a MRI recently? Had a follow up?
















1 Comments
Thanks for answering it was cow I believe I don't know what eds is no mri but I am seeing surgeon on Wednesday and I'm expecting he will fob me off again any advice greatly received x
620923 tn?1452915648
COMMUNITY LEADER

  EDS is Ehlers-Danlos Syndrome and it is a connective tissue disorder many Drs believe may be the reason many of us have Chiari....it is a related condition and those that have it may reject foreign materials...this can cause infection, and patch failure and a increase in CSF production so many Drs place a shunt.

I would ask if they know if you have EDS and the relation btwn the 2......

  Also ask for a follow up MRI to be done to see how things are progressing....
Avatar universal
Thanks very much I have had a lot of stomach pain which I was told was ibs.
620923 tn?1452915648
COMMUNITY LEADER

  I was also DX'd with IBS...so I can relate.....meds as well as stress can also have an effect on IBS and how it affects us.
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