I recently went to see the Chiari specialist for the second time, and I didn't get very good news... but, one of the things that I asked of him... was if he could refer me to a geneticist so I could find out if I did have EDS or not. He then asked me if I have any type of double jointed-ness, which I have a bit, but he said "that doesn't seem like it would really be considered EDS" But, I have been told before, even on this website, to try and be tested to see if I have EDS because of things I have mentioned.
For instance, if I get cut... it takes forever and a day for that cut to heal... and I am allergic to everything, so I can't use any type of antibiotic ointments to help. When I had my decompression I had to have my staples removed early because I was having a reaction to those! I have extreme pain in my joints, etc etc... I haven't been tested, but I personally would say I have EDS but, all these doctors seem to think because I don't have a lot of "hyper mobility" that I can't possibly have it.
So, my question for those of you who do have EDS... or do know a lot about it, am I wrong to think I could possibly have EDS?? I will be seeing a geneticist soon to find out for sure, and not sure if there's anything else I should ask him/her to test me for as well... but, what are your thoughts? Am I just crazy?